Tag Archives: Kelly Kunik

Like these links.

Happy Friday, everyone. I hope you’re wearing blue today to recognize and support everyone living with and affected by diabetes. So in that vein, let me say Happy #BlueFridays!

Now, on to today’s links for your perusal:
Every so often, I go to this site to read what people write. I may have also written something there once. Sometimes, it’s a real help to have a place to unload, and to read and know you’re not alone. Thanks to Christopher Snider for creating
Do you ever find yourself straining to understand or explain terms like average glucose, standard deviation, and coefficient of variation? Want to know more about what you’re looking at in those CGM or meter downloads? Then you’re going to want to keep this article from Adam Brown and Divya Gopisetty at diaTribe handy. Spoiler alert: it includes examples too!
Understanding Average Glucose, Standard Deviation, CV, and Blood Sugar Variability
I don’t quite know how to explain this story, but it involves sunscreen, moisturizers, pump and CGM placement, and it’s not porn. But, as Kelly Kunik will tell you, the struggle is real.
Diabetes Hardware & The Moisturizer/Sunscreen Chess Game
I’m always jealous of Renza Scibilia, because she gets to travel to amazing conferences where things like #DOCDay happen, like at the annual EASD conference in Berlin recently. Her mention of the new Diatravellers initiative caught my eye too.
Read anything fun, inspiring, or interesting lately? Please share! In the meantime, enjoy your weekend, and I’ll catch up with you next week.

It’s back: #IWishPeopleKnewThatDiabetes


Welcome to the second annual #IWishPeopleKnewThatDiabetes Day, brought to you by Kelly Kunik, who would be pleased as punch (made with 100 percent juice) if you would share your thoughts on the subject, using the #IWishPeopleKnewThatDiabetes hashtag. Write, share, and join us for the #IWishPeopleKnewThatDiabetes and #DSMA Twitter chat tonight at 9:00 eastern time here in the USA.

It’s an interesting paradigm: Diabetes is invisible to many, though it certainly is not to those of us living with it. At some point nearly every Person With Diabetes is reluctant or fearful to open up and reveal the challenges that come with managing blood sugar every single minute of every single day for the rest of our lives. Yet, it can be cathartic, rewarding, and yes, overwhelming to actually do that and tell our story to the world.

#IWishPeopleKnewThatDiabetes is not easy. It’s not “set it and forget it”. It’s not a series of rules or directives that will move us instantly to BG nirvana if we follow them all to the letter.

#IWishPeopleKnewThatDiabetes is a lot more involved than that. It’s dealing with insurance and doctor visits. It’s dealing with keeping our insulin warm enough in the winter and cool enough in the summer so it doesn’t go bad. It’s dealing with bad infusion sites, and continuous glucose monitors that can’t work in lockstep with our meters. It’s dealing with the thirst and sluggishness of high glucose, and the hangover feeling of low blood glucose.

#IWishPeopleKnewThatDiabetes means also living with the possibility and the fear of complications. A number of co-morbidities can result from living with this disease, and if we do experience one or more of those, it doesn’t mean that “this happened because we weren’t taking care of ourselves”. And you never have the right to suggest such a thing. Ever.

#IWishPeopleKnewThatDiabetes costs one heckofalotta money. Remember, we have to not only live with diabetes every day the rest of our lives; we have to also pay for the privilege. Prescriptions, durable medical supplies, insulin pumps, CGMs, and enough supplies for unexpected lows. In my country, it amounts to thousands of dollars out of our pocket every single year, for as long as we live.

#IWishPeopleKnewThatDiabetes gets even tougher as you get older. Here in the USA, people who have come to rely on CGM technology to help them avoid dangerous lows must give up their CGM once they reach age 65, or engage in a long appeal process to keep it, because our Medicare program won’t cover it.

#IWishPeopleKnewThatDiabetes needs more voices, and more support for those voices. In the past four years that I’ve been writing in this space, I’ve come across so many brilliant and helpful people that continuously raise the level of discussion and advocacy for those living with and affected by diabetes. But no one person can connect with every person via the information superhighway. So we need more voices, from more perspectives, in more places, to bring diabetes awareness and support to match the need for awareness and support among every segment of our health care systems, economies, and governments.

Your story is important. Share liberally. Thank you for being such an important part of this community.

Like These Links.

Welcome to Friday! Don’t forget to wear blue today to support and encourage everyone living with and affected by #diabetes. I’ve got one more day of software training in New Jersey, then it’s back home tonight. In the meantime, check out this #diabetes click bait.
Does wearing an insulin pump help you have a healthier heart too? Some researchers in the UK think so. I think there are other reasons why this might be true, but there seems to be a link there anyway. Check out this link for the full report:
Insulin Pump Reduces Mortality from Cardiovascular Disease By Almost 50%
Lauren Stanford has a nice recap of the five things that have helped her deal with diabetes burnout and further transition into adulthood:
5 Things That Helped Me Cure Diabetes Burnout
Lauren and her mom Moira are joining the JDRF riders gathering this weekend in LaCrosse, Wisconsin. It’s a little old, but if you haven’t seen it yet, this is worth a read. Moira has this to say about her recovery from a broken ankle and foot, and why her ride is especially important this year:
I’m BACK ON MY BIKE!!! (The One Where I Realize a Harsh Reality)

And thank you both for riding for all of us with Type 1.
Kristin is one of my favorite writers. Last week, she had a less than fun day. This is why we need better, more accurate, more affordable tools to help us manage diabetes:
Diabetes Pulled A Punk-Ass Move
Finally… Hope Warshaw has a wonderful feature on her blog where she interviews DOC champions. Her latest is a nice interview with Kelly Kunik. She talks about starting her blog, finding the Diabetes Online Community, what it means to her, and #IWishPeopleKnewThatDiabetes. Check it out:
Dialoging About Diabetes: PWDs Offer Ways to Improve Communication and Care #11 Kelly Kunik
Enjoy the reads, and enjoy your weekend. Thanks for reading! Have you read anything interesting lately?

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