Category Archives: Diabetes By The Numbers

Diabetes By The Numbers: Clinical Trials and an invitation.

Clinical trials come and go, and often they may seem like the same thing is just being tested over and over again. But it’s really not like that at all.

Case in point is the clinical trial beginning at the University of Virginia Center for Diabetes Technology. Jess Robic and Jennifer Pinnata from the CDT are here to talk about this trial specifically, and to answer a few questions surrounding clinical trial participation in general.

This trial is specifically recruiting MDI (multiple daily injections) users, but it’s using algorithms developed for use in artificial pancreas systems. There are many super interesting aspects to this study.

The best part is all the diabetes stuff you get as part of participation in the trial. It includes:

– Insulin for the length of the trial
– Use of an innovative insulin “smart” pen
– Use of a Dexcom G5 continuous glucose monitor
– Test strips for the length of the trial
– A stipend, dependent on the number of in-person study visits you complete before the end of your participation.

Seriously, if I was an MDI user, I would sign up for this trial yesterday.

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A quick note: this interview was conducted two days before the unrest in Charlottesville, Virginia on August 12. If you’re wondering why we’re so cheery in the interview, and why we’re not even acknowledging anything about the racial discord of that weekend, or the fact that someone lost their life, it’s because it hadn’t happened yet.

In the aftermath of that sickening weekend, all of us decided to wait a bit before airing the episode. If you qualify, I hope you will consider signing up for this study… I believe it will help lead to something truly unique in insulin delivery for people living with diabetes.
DBTN

Reference Material – Click below for more information on this topic

Jess and Jennifer talk about CDT’s Recruitment Database… to join the pool of potential clinical trial participants, CLICK HERE.

To see the clinical trials currently recruiting and taking place at the University of Virginia, CLICK HERE.

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Diabetes By The Numbers: Mindy Bartleson.

Mindy Bartleson is accomplished. I don’t think that’s overstating it. What’s really amazing is how accomplished she is at only 24 years of age.

Mindy lives with a number of chronic conditions, diabetes being one of them, and we talk about them here. Many people remember her from her previous work at College Diabetes Network. She has a really super blog. Her writing has been featured on numerous websites.

And now, she’s written a book.

We talk about the book, about what it’s like to live with so many things and go to college and write a blog and write a book too.

This interview is being aired in conjunction with the kickstarter campaign designed to help Mindy get her book published. CLICK HERE to contribute… the end result will be well worth it.

Here’s a pretty revealing look at one of nicest people you’ll ever get to know.

DBTN

Reference Material – Click below for more information on this topic

Help Mindy publish her book! To donate to Mindy’s Kickstarter campaign,
CLICK HERE.

Mindy’s blog is titled There’s More To The Story, and you can find it here:
blogMoreToTheStory.com

Diabetes By The Numbers: Tidepool’s Big Data Donation Project.

Truth be told, I look to Christopher Snider as the gold standard for quality diabetes interviews and podcasts. I’ve wanted him on this podcast for some time.

Now, with that out of the way, let me tell you why Christopher was part of the podcast this week. He has a new role, as Community Manager at Tidepool.

Tidepool is a terrific nonprofit organization that helps provide a free, open platform where people with diabetes, doctors, researchers, and others can either upload or view diabetes data. Christopher explains it way better than I do, so I will encourage you to listen for that.

We spend a good amount of time talking about Tidepool’s recently announced Big Data Donation Project. Tidepool has agreed to donate ten percent of any fees they receive for selling your de-identified data to researchers. The money will go to one of eight diabetes nonprofits that you probably know well. Christopher explains it way better than I do, so I will encourage you to listen for that too.

There’s also a vague reference to Odin, the Norse god.

DBTN

Reference Material – Click below for more information on this topic

Christopher Snider is Community Manager at Tidepool:
Tidepool.org

To find out more about Tidepool’s Big Data Donation Project, go to:
Tidepool.org/BigData

Christopher Snider is host of two amazing podcasts:
Just Talking Podcast
Mark All That Apply

Diabetes By The Numbers: March for Health (part 2)

How do you do two interviews on the same subject on different days within the same week? It helps if something big happens on one of the days in between interviews.

“Everything in my life, every decision I’ve made throughout my life, has always been framed around, ‘Will I be able to get health insurance?’.”

In part two of my discussions with leaders of the March for Health, the wonderful organizer of the Nashville march, Cara Richardson explains perfectly why, even though the Speaker of the U.S. House of Representatives pulled his “repeal and replace” healthcare legislation from consideration last Friday, there is still a need for a March. She explains exactly why access to care and spreading knowledge of patient’s rights are such an important part of her life.

Trust me… this will be well worth your time.

DBTN

Reference Material – Click below for more information on this topic

Cara Richardson is organizer for the March for Health in Public Square Park, Nashville Tennessee, Saturday, April 1st at 11:00 a.m. To find out all about March for Health Nashville, or to find another city where you can march; or to help support March for Health with a donation, go to:
MarchForHealth.org

March for Health still needs volunteers who can help with everything from e-mails to fundraising to setup & cleanup. To become a March for Health volunteer, email:
volunteer@marchforhealth.org

Cara writes about her life with diabetes at the blog Every Day, Every Hour, Every Minute:
countrygirldiabetic.blogspot.com

Diabetes By The Numbers: March for Health (part 1)

Wow. What a turn of events. Last Thursday, when Leyla Mansour-Cole and I recorded this interview, we were less than 24 hours away from the unexpected move of the Speaker of the House of Representatives pulling the Republican’s “repeal and replace” health care legislation from consideration.

Still, there is a lot left to debate when it comes to health care in America. And that’s why people all over the country will be participating in the March for Health Saturday, April 1. So many of us are affected by the way care, drugs, and medical technology are delivered in this country. That’s a lot of what we’ll be talking about in this episode.

And don’t forget to listen to Wednesday’s companion interview on March for Health with Cara Richardson. Together, these two are the model of what happens when you see an important issue and throw yourself head first into the discussion, making a huge, positive impact.

DBTN

Reference Material – Click below for more information on this topic

Leyla Mansour-Cole is National and Washington, D.C. coordinator for the March for Health, Saturday, April 1st. To find a city where you can march, or to help support March for Health with a donation, go to:
MarchForHealth.org

March for Health still needs volunteers who can help with everything from e-mails to fundraising to setup & cleanup. To become a March for Health volunteer, email:
volunteer@marchforhealth.org

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