Category Archives: Diabetes By The Numbers

It’s Diabetes Podcast Week! Diabetes By The Numbers presents: Karen Graffeo and Diabetes Sisters Voices

Hello, and welcome to my little part of Diabetes Podcast Week.
dpodcastweeklogo2017
This week, eleven diabetes podcasters and video bloggers are taking part in a week-long diabetes information-fest, and centering once again on the Spare A Rose, Save A Child campaign. So listen to this episode, then use the giving link to make your donation and save the life of a child living in a developing country who is also living with diabetes. More information on Spare A Rose, Save A Child is at the beginning of this episode, and there’s an additional link below.

My guest for this episode is one of my best friends in the world, Karen Graffeo. But that’s not why you should listen to our conversation. You should listen because Karen, in addition to leading Diabetes Sisters’ Virtual PODS (Part Of Diabetes Sisters) group, is helping to lead Diabetes Sisters Voices, a collaboration between Diabetes Sisters, the Johns Hopkins University, the University of North Carolina, TrustNetMD, and the Diabetes Sisters stakeholder advisory board of women and diabetes advocates.

If you’re a woman living with diabetes, there is an easy way for you to participate in this groundbreaking research, and Karen is going to tell you all about it. There’s also a link below. I think I also may have inadvertently convinced Karen to reprise Diabetes Blog Week this spring:) I hope so.
DBTN

Reference Material – Click below for more information on this topic

Are you a woman living with diabetes? Find out more and participate in Diabetes Sisters Voices research:
DiabetesSistersVoices.org

Help save the life of a child by using the giving link and donating to Spare A Rose, Save A Child:
LifeForAChildUSA.org/SpareARose

Thanks to Stacey Simms for coordinating Diabetes Podcast Week again. Find out about Diabetes Podcast Week and meet each podcaster by going to:
StaceySimms.com

Karen Graffeo writes about her life with diabetes, and hosts Diabetes Blog Week at:
BitterSweetDiabetes.com

Diabetes By The Numbers (Part 3): Christel Marchand Aprigliano and DPAC.

Time now for the third and final part of my conversation with Christel Marchand Aprigliano. If you haven’t yet listened to the first two parts of our chat, please go back after this episode and listen to them, because they are well worth your time.

In this episode, we talk about Diabetes Patient Advocacy Coalition, or DPAC. Christel and Bennet Dunlap started DPAC as a way to help amplify the voice of the patient to elected officials and policy makers. They provide a slew of tools that empower friends, family, and fellow advocates to take action on a number of diabetes-centric issues. Often, in less than one minute.

Note: I volunteered with DPAC in 2016, and plan to do so again in 2017.
Also, I should mention that this interview was recorded after the November 2016 election, but prior to the beginning of the 115th U.S. Congress in 2017.

Thanks so much to Christel for sitting down for this conversation. Enjoy, and get your advocacy on!
DBTN

Reference Material – Click below for more information on this topic

Christel Marchand Aprigliano writes about diabetes at:
ThePerfectD.com

You can connect with Diabetes Patient Advocacy Coalition, or DPAC, at:
DiabetesPAC.org

Diabetes By The Numbers (Part 2): Christel Marchand Aprigliano on insulin pricing.

Welcome back to Diabetes By The Numbers.

Today, I feature the second part of my conversation with Christel Marchand Aprigliano.  In this episode, we talk about one of the hot button issues of the day– insulin pricing.

We cover a recent meeting between insulin makers and diabetes advocates, and developments on pricing announced by two of those insulin makers since that meeting took place in November of 2016.
DBTN

Reference Material – Click below for more information on this topic

Christel Marchand Aprigliano writes about diabetes at:
ThePerfectD.com

You can connect with Diabetes Patient Advocacy Coalition, or DPAC, at:
DiabetesPAC.org

Diabetes By The Numbers (Part 1): Christel Marchand Aprigliano talks about the Diabetes UnConference.

I can’t tell you how excited I am to finally share a conversation with Christel Marchand Aprigliano. In three parts.

Christel, as I mention in the introduction, is a force in the diabetes world. Until there isn’t a diabetes world any longer, we can only hope to have advocates like her who get in the trenches and fight for the things that are important to those of us living with this disease.

In part two of our conversation, you’ll hear about one of the hot topics of the day, insulin pricing, where roles are slightly reversed, and I’m the feisty one. Part three will cover Diabetes Patient Advocacy Coalition, and how using the easy button can help you get your diabetes advocacy started, and up your diabetes advocacy, all in less than two minutes. Those episodes are still to come, and you’re not going to want to miss them.

Today, we talk about the unique gathering known as the Diabetes UnConference. Christel covers all the things that make the UnConference life-affirming. We discuss the No Social Media policy that exists during the sessions on Saturday and Sunday, and why that is so important to attendees. And Christel admits that her intentions in creating the UnConference were not entirely altruistic (her words, not mine). She needs it just as much as the rest of us.

If you’re in a place in your walk with diabetes where you could use some space to vent, or learn, share, and meet new friends, whether diabetes has been in your life for days, weeks, months, or years, this is the podcast episode you’ve been waiting to hear.

Full disclosure: I will be a facilitator at the Diabetes UnConference in both locations this year. I am not compensated in any way for this interview, except in the good vibes that come with going one on one with a person whom you admire and trust and learn from at every turn.

DBTN

Reference Material – Click below for more information on this topic

Christel Marchand Aprigliano writes about life with diabetes at:
theperfectd.com

Find out everything about the Diabetes UnConference (and read experiences from attendees too), by going to:
DiabetesUnConference.com

The Diabetes UnConference will be held February 10, 11, and 12 at the Westin Las Vegas. Register by January 24 by going to:
DiabetesUnConference.com/register

Diabetes By The Numbers: Mariana Gomez covers healthcare in Mexico.

Diabetes By The Numbers is back, with the first in what I hope will be a series of episodes in which I’ll investigate healthcare in countries other than my own.

Helping me get started is Mariana Gomez. Mariana is a super diabetes advocate, through the diabetes community in Mexico City where she lives, as a writer at her personal blog, dulcesitosparami.com, and as Community and Social Media Assistant for the Hispanic Market at Diabetes Hands Foundation.

In addition to that, she’s a licensed practicing psychologist. And oh, by the way, she’s been living with Type 1 diabetes for over 30 years.

Mariana is uniquely qualified to discuss diabetes at any time, and certainly qualified to discuss the state of healthcare for those living with diabetes in Mexico.

As I said, this is the first in what I hope will be a series of interviews on healthcare from a number of countries. If you’re living in a country outside of the USA and you’d like to talk about healthcare where you live, please send me an e-mail at happymedium[dot]net[at]gmail[dot]com and let’s talk.

DBTN

Reference Material – Click below for more information on this topic

Mariana Gomez is Community and Social Media Assistant for the Hispanic Market at Diabetes Hands Foundation:
diabeteshandsfoundation.org

You will often see Mariana at DHF’s Spanish-language community site:
estudiabetes.org

Mariana has a wonderful personal blog:
dulcesitosparami.com

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