Tag Archives: Renza Scibilia

Diabetes By The Numbers: Renza Scibilia talks ATTD, #LanguageMatters, and #SpareARose


One of the surprising things I’ve found out about myself while interviewing people for Diabetes By The Numbers is that I’m one of the worst pronouncers of names I’ve ever met.

That’s horrible, especially when I have a guest as special as Renza Scibilia. Renza is a diabetes superhero worldwide, with her blog, her work for a large diabetes organization in Australia, and her presence at the forefront of the most important issues facing all of us.

After Renza gets me straightened out on the correct pronunciation of her last name, we talk about the upcoming ATTD conference in Berlin, the importance of #LanguageMatters, and how critical the Spare a Rose campaign is.

Which is timely, because this episode of Diabetes By The Numbers is part of Diabetes Podcast Week, February 10 through 16. All of the podcasters and video bloggers are throwing their efforts this week behind the Spare a Rose, Save a Child campaign through the International Diabetes Federation’s Life for a Child program.

As I’ve mentioned before, the cost of one rose (about $5 USD) saves the life of a child for one month. The cost of a dozen roses gains a child in another part of the world an entire year to play, go to school, and be with their families. Who doesn’t love that?

There are children all over the world who are depending on us. So please, take time right now. Click on the link below and share it with everyone you know. And now… here’s Renza!
DBTN

Reference Material – Click below for more information on this topic

Renza Scibilia is a gifted writer, and you can read her at:
Diabetogenic.wordpress.com

Be part of the Spare a Rose, Save a Child campaign this year by making your donation at:
LFACInternational.org/SpareARose

Reconciling Superlatives

You know, I kinda hate the idea of writing about what someone else wrote. The idea is theirs originally, and if I write about it too, then I feel like I stole their idea.

That said, I hope you will permit me this one deviation from that notion. Because I read a blog post at Diabetogenic this week titled The Weight, and I’m having a tough time reconciling what I think was a well thought out statement, with my own feelings on the subject. If you haven’t, you should probably read that first before continuing here.
 
 
I’ve never met a single diabetes advocate who considered themselves a good advocate. Some won’t consider themselves advocates at all. I’ve never met a good diabetes writer who considered themselves a good writer either. Yet… I consider those people good advocates. I consider some people good, or even great writers.

When I notice that someone hit a milestone in their life with diabetes, I want to congratulate them. I want them to know that someone recognizes how hard it is to live day after day with this condition. I recognize that sometimes staying alive requires at least occasional moments of extreme bravery and conviction.

I’ve referred to PWDs as brave souls. I’ve referred to PWDs as incredible and amazing. Heck, I hand out medals that say “Champion Athlete With Diabetes” on them.

I like making people feel better by extoling their accomplishments in “syrupy superlatives“, to borrow Renza’s expression.

Still, she has a very valid point. We are just doing what we need to do to make it another day, hopefully giving ourselves a better chance at a long-lasting (and long-living) legacy.

I can understand why someone would want to be complimented for something other than their diabetes. Why wouldn’t someone want to hear their friend tell them their t-shirt is cool, or they’re a great parent?

So I’m in a bit of a conundrum. How do I reconcile my strong desire to make people feel good about their life with diabetes, while not making it about the diabetes?

Like a lot of other things, this will require some thought, and perhaps a shift in how I interact with other People With Diabetes. That’s not a bad thing.

I’m not afraid to take a look at myself, and whether I’m doing someone a service by complimenting them about their diabetes, or just making them uncomfortable.

For the record, I’m grateful for diabetes bloggers who give me something meaningful to think about now and then. I’m okay with being challenged about how I communicate with others.

I just want to be worthy of the challenge.

Like these links.

Happy Friday, everyone. I hope you’re wearing blue today to recognize and support everyone living with and affected by diabetes. So in that vein, let me say Happy #BlueFridays!

Now, on to today’s links for your perusal:
 
 
Every so often, I go to this site to read what people write. I may have also written something there once. Sometimes, it’s a real help to have a place to unload, and to read and know you’re not alone. Thanks to Christopher Snider for creating
MyDiabetesSecret.com
 
 
Do you ever find yourself straining to understand or explain terms like average glucose, standard deviation, and coefficient of variation? Want to know more about what you’re looking at in those CGM or meter downloads? Then you’re going to want to keep this article from Adam Brown and Divya Gopisetty at diaTribe handy. Spoiler alert: it includes examples too!
Understanding Average Glucose, Standard Deviation, CV, and Blood Sugar Variability
 
 
I don’t quite know how to explain this story, but it involves sunscreen, moisturizers, pump and CGM placement, and it’s not porn. But, as Kelly Kunik will tell you, the struggle is real.
Diabetes Hardware & The Moisturizer/Sunscreen Chess Game
 
 
I’m always jealous of Renza Scibilia, because she gets to travel to amazing conferences where things like #DOCDay happen, like at the annual EASD conference in Berlin recently. Her mention of the new Diatravellers initiative caught my eye too.
#DOCDAY at EASD2018
 
 
Read anything fun, inspiring, or interesting lately? Please share! In the meantime, enjoy your weekend, and I’ll catch up with you next week.