Tag Archives: Diabetes Mine

Like These Links

Welcome to Wednesday… when, for the first time in a long time, I’m handing out links like they’re candy at a hypoglycemia festival. Let’s get started:
 
 
First of all, in case you missed it, the 2019 DiabetesMine Patient Voices Scholarship Contest is underway. That means you have a chance to go to San Francisco for a few days and participate in two of the most incredible events on the diabetes calendar all year: The DiabetesMine Innovation Summit and the D-Data Exchange event. I’ve always wanted to go to this, but may not apply due to other commitments.

However, I want to encourage you to apply for a scholarship! Why not you? Get all of the details and the link to apply:
OPEN FOR APPLICATIONS: The 2019 DiabetesMine Patient Voices Scholarship Contest!
 
 
In addition, if you think that medical devices like insulin pumps and CGMs are like, reeeaallly cool, you might want to check this out from the U.S. Food and Drug Administration. This page definitively explains the FDA’s proposed changes to its digital health software (is there any other kind?) precertification program.

One of the biggest proposed changes is to allow device manufacturers with a track record of quality and a willingness to monitor their devices post-approval a streamlined pathway toward approval. In my mind, that’s big, in that manufacturers would be monitoring devices post-approval, the way drugs approved by the FDA are.

It’s an interesting and informative read:
Digital Health Software Precertification (Pre-Cert) Program
 
 
If you know me, you know I’m a foodie, and I really like the Hangry Woman blog. Recently, Mila, the author, published a terrific post featuring five breakfast recipes. I should admit right now that I hate fried or hard boiled (or soft boiled) eggs, but I’m pretty sure I could make updates to most of these and have them come out fine. See what you think about these:
5 Filling Diabetes Breakfast Recipes

(I checked, and as far as I can tell, none of the recipes actually has diabetes)
 
 
Finally, from Renza at Diabetogenic, a few words about community, what it means, and how we all fit into our community, however we define that word. If you read none of the other posts above, read this one. It will make your day:
Community Connections
 
 
While I’m at it, thank you for clicking on links to come here and find out what I’m thinking. It means the world to me, and I’m thrilled that you have become part of my community.

Like these December Links.

Lots and lots of interesting things to read about in the diabetes blogosphere this week… So let’s get to it:
 
 
Christopher Snider, who writes at A Consequence of Hypoglycemia, has started a new gig at Symplur. In his words,
“This means I get to look at all kinds of data collected by Symplur’s extensive tools and figure out ways to bring the patient communities into these data-based conversations.”

His first post about it features a very interesting look at the World Diabetes Day Twitter chat hosted by Diabetes Community Advocacy Foundation. Lots to digest, but if you’re an analytical nut like me, it’s kinda cool.
 
 
“All things are temporary.”
If you need something inspirational one week before Christmas, here it is.
Take this with you all through the next year.
 
 
This made me laugh… and then cry.
 
 
Diabetes Mine has announced a new partnership with Healthline. Healthline, among other things, is famous for its list of “Influential [insert condition here] Bloggers of The Year”. The partnership goes live in January, and in addition to lots of collaboration, it promises to bring a new look to the website.
 
 
Finally… I am in love with this blog I just found.
I’ll leave it to you to click over and discover what I’m talking about.
 
 
I hope your December days are full of fun and magic. Don’t forget to join me for the #DSMA Twitter chat tonight at 9:00 eastern time here in the USA. Follow @DiabetesSocMed and the #DSMA hashtag to join the conversation. In the meantime…

Happy Reading!
 
 
 

Like These Links.

A few quick hits for you today, since my life has become crazy in the last few days:

– First, the reason why things are so crazy: I developed a major tooth problem over the weekend, which necessitated my first trip to a dentist in about ten years. More on that later. But a root canal is in my very near future, and because of that, my pump decision has been put on hold until 2015. I think my new gravatar is going to be me crossing my fingers, hoping my Medtronic Revel™ pump holds out. If it doesn’t, I’m back on MDI until I can save some money.
 
 
– Speaking of insulin pumps: I have two things to tell you about. First, as many of you know, Asante, makers of the Snap pump, will let you try out their pump for up to 30 days. They’ll even throw in a voucher to cover the Humalog cartridges that go with it. And if you decide to try the Snap pump this month, mention Diabetes Hands Foundation, and Asante will make a donation to DHF. Win-Win! To find out more, go to http://snappump.com/landing/dhf

Something else made its way to my inbox… During the month of December, Tandem, makers of the t:slim pump, are offering up to $400.00(US) toward the out-of-pocket cost of the t:slim as part of a pump exchange program. I’m a little short on details, but if you contact your local t:slim rep or call 877-801-6901, I’m sure they can fill you in.
 
 
– Your response to the open docket on Food and Drug Administration Activities for Patient Participation in Medical Product Discussions (Docket number FDA-2014-N-1698) has been tremendous. People have blogged and reblogged and shared via Facebook and Twitter and other avenues, and that has caused a noticeable spike in comments added to the docket. Last I checked there were 106 comments submitted so far. Thanks Strip Safely, Diabetes Mine Diabetes Hands Foundation and Diabetes Advocates, Christel Aprigliano, Bennet Dunlap, The Type 2 Experience, and everyone who has shared this far and wide.

If you haven’t left your comment yet, you still have until December 4th. That’s two days from this publication.

It takes a village, and this village rocks.
 
 
So… what’s new in your world?
 
 
 

It makes my heart hurt.

I was alerted to this by a co-worker the other day. So when I had a moment over the weekend, I drove into the city, to the corner of North Avenue and Greenmount to check it out myself. Then I drove around a bit.

DSC01476

These signs are up on nearly every street corner in some lower-income parts of Baltimore right now. I couldn’t wrap my head around this idea when I first heard about it, but now that I’ve seen that sign (and many others), something is really bothering me.

So I did some research. I found that companies buying test strips, then reselling them, is nothing new. It’s also legal, if whoever is reselling the strips has FDA approval to do so. In fact, Diabetes Mine did an important story on this almost two years ago (they get quoted about once a week here, and twice on weeks with days ending in Y). Mike Lawson did the investigating and wrote the story, and it gave me chills.

It also had me asking questions. Questions like: What kind of screwed up healthcare system do we have in America, when people who need help have trouble getting it, and people who prey on others with very little cash can operate with impunity? How does all of this work? What kind of profit is there in this?

Well, the money must be good at least. Because there are dozens of sites online that will buy up your test strips. And then resell them. Some are operated by individuals, some by actual companies.

As I mentioned, I’m very distressed by the presence of these signs in my community. I absolutely hate the idea that people with very little will feel the need to take shortcuts on their diabetes management just so they can pay the light bill. It makes my heart hurt.

I feel like there must be a special place in hell for people who exploit this kind of weakness. Rather than helping someone who may really need it, they’re helping themselves to profits on the backs of those who can least afford it, financially or physically.

So I think I’m going to see what I can find out about the organization behind the phone number and the cheesy signs. I can’t really consider myself an “investigative reporter” type. I don’t have any idea what I’ll find out, if anything. But I can’t let go of this yet.

More to come.
 
 
 

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