Author Archives: StephenS

Hello… I’m Stephen. I live in Baltimore, Maryland, USA with The Great Spousal Unit, Maureen. I’ve been living with Type 1 Diabetes since January 1991. I’ve been a pump user since April 2010, and I’m currently wearing the Animas Vibe pump. Also wearing the Dexcom G5 continuous glucose monitor.

I found the Diabetes Online Community in the summer/fall of 2011, and that discovery has changed my life. I started this blog in April 2012, and since then, my diabetes advocacy has continued to grow. Among other achievements, I’ve attended and spoken up at FDA workshops and participated in clinical trials.

I’ve been thrilled to serve as a facilitator for the Diabetes UnConference. And I’ve been honored to volunteer for Diabetes Patient Advocacy Coalition. You should Google both of those.

I’m currently serving as a member of the State of Maryland’s Advisory Council on Health and Wellness, where I am co-chair of the Diabetes committee. In addition, I’m part of the 2018 Reader Panel at Diabetes Forecast magazine.

I’m always searching for the perfect balance between the highs and lows of my blood glucose level and my life… always searching for the Happy Medium.

Anything you’d like to share? Please let me know… I’d love to hear from you.

Medtronic and Dexcom in a good light.

Tuesday’s post covered a couple of potential issues with devices made by Medtronic and Dexcom. And I seem to remember a similar post that included Medtronic a couple of months ago.

Taken just as they are, these posts might give you the impression that I have a problem with Med-T and Dex. Trust me… I do not have an axe to grind. I really do try to be fair and balanced. Not fair and balanced like a certain news organization here in the States that eggs on congress to repeal the Patient Protection and Affordable Care Act (the house voted against it 37 times already), then champions House Speaker John Boehner when he states that “…creating a better environment for jobs has been and will remain our top focus”. But I digress.

What I’d like to do today is talk about the things that I really like about the Medtronic pump I have, and the Dexcom continuous glucose monitor (CGM) I’m using as part of a clinical trial. M’kay?
 
 
First, Medtronic.

The single best thing I can say about my MiniMed Paradigm® Revel™ insulin pump is that it’s reliable. It has never once failed me. Oh, I’ve gotten a motor error or two now and then, but I was always able to overcome that without too much difficulty. By “without too much difficulty”, I mean within five minutes.

I’ve also dropped my pump several times over the last three and a half years. I’ve scratched it. I’ve let it get dirtier than a medical device should ever be, and it still keeps going. It’s been on bike rides and runs and through airport security more than a few times. No problems here… still pumping.

And when it comes right down to it, what I want most out of a medical device designed to help keep me alive is reliability. My pump has that in spades.
 
 
Now, Dexcom.

There’s a lot to like about the Dexcom G4™ continuous glucose monitor. To begin with, the insertion process is simple, smooth, and often completely painless. For the study I’m participating in, I’m required to wear the sensor on my belly only, so I haven’t had a chance to try it anywhere else. But I really like the fact that I can get the sensor in easily, and that once it’s in I almost never feel it.

Since it’s not integrated with my pump, the Dexcom CGM has its own display device. Much has been written about how 21st century and sexy this little thing is. I mean, it is kinda nice, and it looks a lot like other electronic devices we all carry around every day. But I really dig two things about it. One, it holds a charge for a loooong time (and recharges quickly). And two, the range on the device is pretty good. I’ve gotten into the habit of reminding myself to put it in my pocket every time I stand up now, so I don’t leave it on a table or on my desk at work. But if I’m in a meeting in a big conference room, I can leave it on the conference table and get up to walk around the room without worrying about whether I’ll be out of range. At home, I can sit it on the front steps while I mow the front lawn (I have a small yard, but it’s big enough to be out of range for other CGMs).

Finally, I like the Dexcom Studio™ software used to track all of the data from the CGM. Lots of user-friendly, understandable graphs, charts, and other features that help me understand my glucose trends better. I could go into detail, but if you’re really interested in finding out more about it, you should probably check out the information on the Dexcom website.

I haven’t tried a lot of continuous glucose monitors (just Dexcom and Medtronic), but my impression of the Dexcom G4™ is that it’s the Cadillac of CGMs right now. If you disagree, feel free to let me know why by leaving a comment.
 
 
So you see, it’s not all bad. If you think about where we were twenty years ago, there really has been a lot of hard work done and progress made on insulin pumps and CGMs. I hope that in future years, Medtronic and Dexcom will be able to keep the best features of their current products, and improve and enhance the worst. Our lives, and the quality of our lives, depend on it.
 
 
 

Wordless Wednesday. Multi-Purpose Packaging.

This little package has three important uses:

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First… If you freeze these little guys, they’re great for keeping your lunch cold:
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Second… Best.Stress.Reliever.Ever.
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…And I simply couldn’t live without what comes in these little boxes:
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Happy Hump Day!
 
 
 

Pumps and CGMs and being a bear.

Oh My! There are a couple of things I want to draw your attention to. I wasn’t quite sure how I was going to write about these things, but fortunately, someone else already has.

These both may seem kind of negative, and I don’t really mean to sound that way. Sometimes, I can be a bear when it comes to problems with things that are intended to help keep us alive. But these issues are what they are, so I’m telling you about them now so you’ll know. As a counter to these points, I will promise you, Medtronic, and you, Dexcom, that I’ll write something good about your products before the end of the week.

– Medtronic has sent a letter to all of their pump users with detailed descriptions of how to properly remove your insulin reservoir from your vial of insulin. Turns out, there’s a wrong way to do it and you may not know. I didn’t. Not following the proper procedure could have serious consequences. Medtronic has the write-up on this issue right here:
http://www.medtronicdiabetes.com/support/product-updates
 
 
– Also, Sara over at Moments of Wonderful experienced an issue with Dexcom™ CGM audible alarms not going off. This is not an “official” Dexcom™ issue, but in light of going low without hearing an alarm at night a couple of months back, I’m wondering about my own unit right now. Read Sara’s post here:
http://momentsofwonderful.com/2013/06/looks-can-be-deceiving/
 
 
And while we’re talking, don’t forget to vote early and often for your favorite posts from around the #DOC for the June Best of the Betes Blogs! All of the details are here:
http://momentsofwonderful.com/best-of-the-betes-blogs/
 
 
See, I did get something positive in there at the end. Toward the end of the week, the shiny side of the Medtronic and Dexcom coins.
 
 
 

A New Vision.

Sorry about the drifting eye there... it's the only photo we got of my new glasses

Sorry about the drifting eye there… it’s the only photo we got of my new glasses

…….I still can’t get over what’s going on with my right eye in that photo.

Anyway, it looks like I have a new ophthalmologist.

My previous eye doctor moved his practice. I would’ve been happy to follow him to his new office. But he also stopped accepting insurance of any kind, and that meant I needed to find someone new.

After procrastinating on it for too long (two years between appointments… I know), I called and made an appointment with someone that my endocrinologist recommended. It turns out he was terrific.

There was an initial exam and the obligatory pupil dilation with an assistant, and then it was time to see the doctor himself. We spoke briefly before the main exam. I told him that I thought it might be time for bifocals(!), which I had shunned with my previous eye doctor before. My previous glasses were all about being able to see at a distance, but the fine print on pill bottles and on printed pages was becoming more difficult to see now. We also talked briefly about the big things that everyone with diabetes worries about: retinopathy and diabetic macular edema.

The good news is that I show no signs of either. That’s what I’ve heard at every exam for the 22-plus years that I’ve been living with Type 1 Diabetes, but it’s still a huuuuge relief when I hear those words.

As for my eyesight in general, I’m told that I’m showing a relatively normal weakness that comes with a 51 year old pair of eyes that sit in front of a computer all day. In the end, instead of winding up with bifocals, I’m in a pair of progressive lenses. They come with an adjustment period, which I’m going through right now. When things are in focus, wow, I see well. When they aren’t, well, it’s taking some time to dial it all in. I’m told things will be this way for a couple of weeks until my brain adjusts to what it’s seeing through these new lenses.

As for the frames… To be honest, I’m a cheapskate. My last three or four pairs of glasses were all of the $39.99 Cheapo variety. This time, I decided to put a crowbar in my wallet and look for something that had a little style as well as function. As far as glasses go, this is a big departure for me.

I’m on the schedule to have my next visit with the eye doctor at this time next year, because you should always get your eyes checked once per year by a medical professional and never put it off.

Now, if I can just fix that crazy wandering eye thing…
 
 
 

Mari Ruddy has been found.

UPDATE: From findmariruddy.com:

Mari’s family have just given us the following update, as of 6 PM Thursday 6/13:

“Mari is currently in stable condition and in the ICU. We thank you again for all your efforts, support, and continued prayers. We will continue to share updates as we can.”

Mari was found unconscious but alive this afternoon. Her family requests privacy until more information can be shared, and thanks everyone for their efforts.

A lot of prayers were answered today. Thanks #DOC