Tag Archives: DPAC

Got a phone? You’re an advocate.

You know, 2017 was quite a year in health care in the USA. So, what’s happening in health care in 2018?

Pretty much the same things.

Any successes that were achieved in terms of awareness on drug pricing, or access to care, or anything else have been met with continued explanations and excuses, but not any real progress. In all fairness, the rollout of Eli Lilly’s Basaglar and Novo Nordisk’s Fiasp have been positive developments.

But they won’t mean much if few can afford those, or if insurance companies continue to take away choice from patients by only allowing one brand of drug to be on a plan’s formulary, while forcing patients on the non-formulary brands to use something that may not work best for them (a practice known as non-medical switching).

In 2017, successes that came from helping to defeat the forces trying to rip apart PPACA (Obamacare) were hurt by repeal of the individual mandate, the provision in PPACA that reduced overall costs by requiring everyone to have coverage. That happened in the “tax reform” package passed and signed into law last month.

There are other questions, of course… what’s going to happen with the Special Diabetes Program, used to help fund research? What about CHIP, the Children’s Health Insurance Program, which covers many disadvantaged kids living with diabetes? It appears that the furor over partisan politics has left many previously no-brainer health care initiatives in limbo.

Buckle up, kids. It’s going to be another crazy year of fighting to hold on to things that we’ve already fought hard for many times. As a result of congress and the president blowing a trillion and a half dollar hole in the federal budget so they can help insurers and drug makers (among others who were already making more money than ever before), every single piece of spending is in danger of being cut to help make up the voluntary deficit they created.

Does this make you mad? It makes me mad. What do we do now?

First of all, we download the DPAC app. Diabetes Patient Advocacy Coalition will keep you updated on hot-button topics, and most of all, give you easy, quick ways to add your voice to the conversation. And wow, do we need your voice added to the conversation.

In addition, the American Diabetes Association and JDRF are doing a super job of advocating on our behalf, and they could use your support. They are also employing easy, quick tactics to help people living with and affected by diabetes join the advocacy effort from wherever they live. Get on their advocacy mailing lists and start communicating.

And don’t forget, you can always use your phone to actually speak with a person too. Contact your congressperson, senator, or even your president and let them know the score. Let them know you won’t be going away.

We don’t have to go all the way to Washington to share our personal stories. We don’t have to schedule time with a member of congress, hoping to get a chance to speak. We can speak now, loudly, and in unison, and easier than ever before.

If you have a phone, you are an advocate.

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2018, you have big shoes to fill.

Well, it’s been a heck of a year, hasn’t it?

2017 has been the most full, and probably most fulfilling, of my years here at Happy Medium. This year has been quite a bit different from previous years too. Different in a good way.

January started with the beginning of my life on Dexcom, inserting the G5 and employing it as a useful tool in my diabetes management. Even if I complained about sensor and transmitter issues, and having to wear one more thing.

February included participation in the second Diabetes Podcast Week. I really love podcasting, and I wish I had more time to fit it into my schedule. I also shared a few notable quotes, and why they inspire me.

In March, I reported for the fifth time on what is now the JDRF TypeOneNation Summit in Bethesda. They’re getting better at bringing adults into the conversation. I also took the time to remind everyone that Nobody Ever Died from Obamacare.

April 1st marked the March for Health, in many cities across America. I was fortunate enough to be able to speak at the march in Washington, D.C., in the shadow of our nation’s capital. I also shared a story from my personal life that showed me how important it is to support your friends. It wasn’t about what I did… it was about what I learned.

Diabetes Blog Week returned in May this year, and it was wonderful, as always. Also in May, I took time to attend a public workshop at the U.S. Food and Drug Administration. I learned a lot about FDA’s Center for Drug Evaluation and Research, and the drug approval and after-market inspection process.

June brought about the rollouts of the new Accu-Chek Guide glucose meter, and (finally) the Dexcom G5 Mobile App for Android. I couldn’t be happier. I finished up the month with a meeting among diabetes friends, and it reminded me that we need each other now more than ever.

In July, I completed my local 5k run again, and did fairly well for a 55 year old who is a slow runner. I also attended another in the continuing #BeyondA1c discussions, and it was amazing, even if the information shared, at times, felt like I was trying to drink from a fire hose.

August posts included a note on conversations and my reaction to them. “It is always about enlightenment and being more comfortable being myself, and being myself with my diabetes.”

September was a hard month. I went through an unexpected emergency appendectomy, which included a very unexpected complication. Fortunately, I’m all better now.

In October, I shared my new role as a member of Maryland’s Advisory Council on Health and Wellness, and how this new role means I’ll be serving more than just the diabetes patients in my state. I’ll be serving all of the citizens of my state.

In November, I tried to remind everyone that while advocacy is often practiced with a little “a”, the effects of that advocacy can be very big indeed. I also went to a meeting at the U.S. Department of Health and Human Services, where I discovered that I was Enlightened, but Unknowing.

And in December, I’ve talked about doing a trial of the new-to-the-USA Freestyle Libre CGM. And I presented a list of 8 gifts that People With Diabetes could really use right now.

I would be remiss if I neglected to mention the two wonderful Diabetes UnConferences that took place in February and October. Or the fact that we’ve sent out another 15 or 20 Champion Athlete With Diabetes medals. These are feel good stories every single time. I also love hosting the Diabetes By The Numbers podcast, and hope to bring you more episodes in 2018. And thanks to Cherise Shockley and the followers on Twitter for the privilege and fun times shared while hosting some of the #DSMA chats throughout the year.

Thanks also to Christel Marchand Aprigliano for the honor and privilege of representing DPAC at Friends for Life events in July and October. We learn from heroes. We are supported by friends.

This is where I express my gratitude to you for visiting this space on a regular basis… I could do this without you, but it wouldn’t be as meaningful or as fun. Also, I hope that you have had a full and fulfilling year too. Finally, I want to strongly express my desire for all of us to work toward less division, less cost, more access, more support, and mostly, less burden of living with diabetes.

Goodbye 2017… you were a whirlwind, but a remarkable year.

Hello 2018… you have some pretty big shoes to fill.

Same lies, different week.

They’re back.

Lawmakers in the U.S. Senate are trying to take away health care from the Americans they represent. Again.

The newest effort, the Graham-Cassidy-Heller-Johnson proposal, or Graham-Cassidy, as many are calling it, is pretty much the same effort that failed earlier, in a different package. I guess the only thing different about this one is that this time, four guys are actually stupid enough to attach their names to it.

But the basics of the bill are the same as others: Remove Affordable Care Act subsidies and replace them with block grants. Nice idea, but it really never works. And even if it sort of works, it only works on a state-by-state basis. So the truth is that, best case scenario, many patients in many states would have significantly reduced access to care. Even less access to care than before Obamacare was passed.

The bill also proposes to defund Planned Parenthood (again). Like I’ve said before, you can’t do that without saying to millions of American women that breast cancer screenings and other preventative procedures aren’t important to you. That’s a hard sell.

The bill also states that it will “protect patients with pre-existing medical conditions”. Well, excuse, me, but I already have that protection today. This bill doesn’t promise anything new on that, except the assertion that this “protection” they speak of would also come with significantly increased premiums for people living with pre-existing conditions like diabetes, high blood pressure, and yes, pregnancy.

Senator Lindsey Graham, in repeated interviews, has stated that I don’t have to worry, that I would still be able to purchase insurance if this passes. Hey, look, I can still purchase a $120,000 Tesla, but I can’t afford it. This is the same thing: Making health care a luxury product, rather than a right for all Americans.

It still comes back to the same thing for me. If a “repeal and replace” bill can’t offer at least the same access to coverage, at the same cost, as the Affordable Care Act does today, it’s going to be a non-starter for Americans. Especially since half or more of us live with those pre-existing conditions.

We’re tasked once again with defending our right to health care. Contact your elected officials right now. Once again, American lives are at stake.

DOWNLOAD THE DPAC APP on your Apple or Android device –
Use it to contact your elected officials and encourage them to vote No on Graham-Cassidy.
Your voice matters… and you can speak it to your elected officials in less than one minute using the DPAC App.

Friends for Life Orlando 2017.

Full disclosure: I was able to spend last Wednesday, Thursday, and Friday at Friends for Life in Orlando, Florida. Diabetes Patient Advocacy Coalition paid for my travel. All opinions are unquestionably mine, and it was my honor to advocate before so many wonderful people.

Just like last year, I worked the DPAC booth in the exhibit hall at Friends for Life, the largest gathering of People With Diabetes in the country. I was also lucky enough to sit in a couple of sessions and spend time once again with diabetes friends.

I remain grateful for the opportunity to advocate for those living with and affected by diabetes, and in the USA, DPAC is the best, easiest way I know of to make your voice heard by elected officials and policy makers across the country. If you haven’t yet, please download the DPAC app now and add your voice to the growing chorus advocating nationwide.

There was quite a bit of lively discussion during the various advocacy sessions led by DPAC CEO Christel Marchand Aprigliano and Stewart Perry. People were asking questions after the sessions and letting their friends know about DPAC too, and that gives us all a great feeling. I know our advocacy efforts will only grow from here.

The rest of the conference (or at least the part that I was there for) was wonderful too, as always. The Children With Diabetes staff really goes out of their way to make everyone feel welcome… even the exhibitors.

I’m not sure I can tell you anything special about this year’s gathering though. I think there are a number of reasons for that.

First, think about it: there really aren’t any amazing product launches that are new. Medtronic’s 670g is fairly new, but Medtronic was once again absent from the largest concentration of Type 1 diabetes patients in one place anywhere in the country.

There weren’t any recent research announcements either. Nothing that makes patients (and especially parents) excited for the next improvement in diabetes management.

Plus, I think Children With Diabetes has a problem. It’s a wonderful problem created by their wonderful efforts to bring additional sessions to adults, and emerging adults, and teens and tweens, and parents, and other caregivers.

I guess what I’m saying is that I don’t want CWD to change any of that. Their challenge going forward will be to avoid having their amazing inclusiveness create a lot of smaller gatherings, rather than what has always felt like one big gathering of diabetes family.

That’s a tall order. But if anyone can pull it off, I suspect Jeff Hitchcock and his fabulous team can do it. Let’s face it: nothing stays the same. It’s not avoiding change, but instead embracing change and making it work for everyone, that helps great things evolve. And Friends for Life has always been a great thing.

In addition to that, there was one part of Friends for Life that I don’t usually pay much attention to… but it really hit me this year.

I took a couple of moments to go through the Quilt for Life exhibit that is always set up in the back of the hall. The display includes hundreds of quilts depicting various diabetes issues, interests, and people living with this insidious condition.

So to finish up, here are a few photos of quilts I noticed. I don’t know why yet, but the last one really got me, and it still does. I practically broke down right on the exhibit hall floor when I saw it. How does it affect you?



I am under no obligation to do so, but I should mention that there is one more Friends for Life gathering coming up this year, and it will be in my part of the world. Friends for Life Falls Church will be coming to the D.C. area October 6, 7, and 8. To find out more, CLICK HERE.

So many questions. Damn few answers.

They represent the residents of their states in the United States Senate.

– They must be at least 30 years old.

– They must be a U.S. citizen for at least 9 years.

– They must be an inhabitant of the state they represent.

As a citizen of my country, I have a right to expect that members of the United States Senate are serving the people they represent. All of the people they represent, whether those people voted for them or not. I mean, how many of the corporations spending money to help them get elected are actually domiciled in their states, right?

After a lot of closed door scheming, the Senate majority leader decided it would finally be okay to release the onerous upward-wealth-distribution-disguised-as-healthcare legislation he intends to have a vote on this week. On the surface, it would seem that the party in power might have trouble getting the necessary 51 votes to pass their death sentence to Americans. They only have a 52 to 48 seat majority, plus the Vice President available to break any ties, if necessary. That means if they have 3 defectors on this legislation, they won’t be able to pass it.

But… obviously, stranger things have happened in politics, especially in the past year or so. The majority is not taking any chances. They are working hard, maybe harder than they worked on the legislation that they’re trying to ram down people’s throats, to change the minds of the five or so GOP senators who are Nos at this point.

Well, I don’t have to be the second coming of Alexander Hamilton to know that this is not how American democracy is supposed to work. I don’t have to be the second coming of Edward R. Murrow to know that American citizens have the right to know what their elected officials are up to, and what they stand to gain from turning their backs on American values. I don’t have to be the second coming of Rev. Martin Luther King Jr. to see that not only partisanship, but racism is alive and well in the U.S. Senate.

I have a lot of questions. Why do they think that saving money should be the only criteria for what they’re doing? If your child is sick, aren’t you going to do whatever you can to help them feel better, regardless of the cost? Why doesn’t congress feel this way? Why is there a wealth distribution toward the already excessively rich tied to health care?

Additional questions include: What are they so afraid of? Why must it be rushed through to a vote? Why do these Republican senators hate the Americans they represent so much?

To be honest, I think they hate the previous president more than they hate me. They really hate the previous president. You and me, they couldn’t care less about.

Why else would they want to take away pre-existing condition protections? Why would they want to subject hospitals, care facilities, and Americans like you and me to potential bankruptcies? Why would they want to kick veterans off of Medicaid?

We’re left with a lot of questions, and damn few answers.

But I know a way to silence those questions. That would be by stopping this hateful, un-American legislation. If these senators could just set aside their hatred, and in some cases, their racism toward the previous president, we would be left with only one question:

How do we make health care better?

That’s a goal that every American would be happy to support. Including this American.

DOWNLOAD THE DPAC APP on your Apple or Android device –
Use it to contact your elected officials and encourage them to vote No on BCRA.
Your voice matters… and you can speak it to your elected officials in less than one minute using the DPAC App.

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