Tag Archives: diabetes

It’s Diabetes Podcast Week! Diabetes By The Numbers presents: Karen Graffeo and Diabetes Sisters Voices

Hello, and welcome to my little part of Diabetes Podcast Week.
dpodcastweeklogo2017
This week, eleven diabetes podcasters and video bloggers are taking part in a week-long diabetes information-fest, and centering once again on the Spare A Rose, Save A Child campaign. So listen to this episode, then use the giving link to make your donation and save the life of a child living in a developing country who is also living with diabetes. More information on Spare A Rose, Save A Child is at the beginning of this episode, and there’s an additional link below.

My guest for this episode is one of my best friends in the world, Karen Graffeo. But that’s not why you should listen to our conversation. You should listen because Karen, in addition to leading Diabetes Sisters’ Virtual PODS (Part Of Diabetes Sisters) group, is helping to lead Diabetes Sisters Voices, a collaboration between Diabetes Sisters, the Johns Hopkins University, the University of North Carolina, TrustNetMD, and the Diabetes Sisters stakeholder advisory board of women and diabetes advocates.

If you’re a woman living with diabetes, there is an easy way for you to participate in this groundbreaking research, and Karen is going to tell you all about it. There’s also a link below. I think I also may have inadvertently convinced Karen to reprise Diabetes Blog Week this spring:) I hope so.
DBTN

Reference Material – Click below for more information on this topic

Are you a woman living with diabetes? Find out more and participate in Diabetes Sisters Voices research:
DiabetesSistersVoices.org

Help save the life of a child by using the giving link and donating to Spare A Rose, Save A Child:
LifeForAChildUSA.org/SpareARose

Thanks to Stacey Simms for coordinating Diabetes Podcast Week again. Find out about Diabetes Podcast Week and meet each podcaster by going to:
StaceySimms.com

Karen Graffeo writes about her life with diabetes, and hosts Diabetes Blog Week at:
BitterSweetDiabetes.com

26 Years: Let’s Go.

Well, it’s happened again. I’ve managed to check off another year of living with Type 1 Diabetes.
26
The official milestone occurred on January 30/31 (it’s a long story). I went to work, where things were crazy busy, but I managed to get through it. After work, I went home, had a modest dinner, and wrote a little. Kinda boring, right?

That’s the thing this year. It’s not that announcing that I’m still here after 26 years isn’t wonderful. But I think I may have moved over from the “how many years can I rack up living with diabetes?” phase to the “how much more of my life can I live with diabetes?” phase. So far, I’m a little over a year short of diabetes being with me for half of my life.

Go ahead… do the math… I’ll wait.

I guess it would be natural to wonder, since I’m almost in my mid-fifties, if I should be worried about whether I’ll be around much longer considering my chronic health status. But I don’t really think in those terms.

It’s a normal thing to consider, but I also try to remember that the time spent worrying about what might happen (and when it might happen) takes time away from the time I have left to make the rest of my life meaningful. And fun. And spectacular. Besides… who, other than a teenager, thinks of someone my age as near the end?

26 isn’t a big diaversary, and I didn’t do anything fantastic to celebrate. Not that doing so isn’t okay. To be honest, I’m happy as hell to have made this milestone. But I’m more interested in what year 27, and 37, and 47, and all the years in between have in store. I’m not afraid, and I’m ready for the experience. Let’s go.

I already have to live with diabetes all day, every day. Why do I have to attach another thing to my body to remind me of that?

So, my new continuous glucose monitor had been sitting in the box it was shipped in since around Thanksgiving.
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Beginning to wear it now is not a New Year’s Resolution, or an effort to game my diabetes data gathering to avoid the high carb temptation that bombards us during the holiday season. No, it’s not that simple. I’m not going gently into that CGM-inspired good night.

Nor do I have a simple answer for why I’ve waited so long to use a CGM, and why I’ve waited so long to start to wear it since it arrived. In this case, the answers aren’t simple. They’re also not pretty.

I can give you reasons why I’ve resisted so long. Worries about having to carry the receiver in my already overloaded pockets (no, I don’t have an iPhone, and until an iPhone carries a price less than a few hundred dollars more than a comparable phone, I’ll stick with my Android platform– which means I have to carry the receiver too). Concerns about using up already valuable real estate by having both an insulin pump and a CGM inserted into my body at the same time.

Any concerns I might have had about appearances, I lost long ago. When it comes to looks, I care a lot more about my clothes than about my devices. So how it looks doesn’t affect me.

Wearing an insulin pump was an easy process for me. No problems getting started or staying with it, and nearly seven years later, I’m a proud insulin pump user. What’s the issue anyway?

I don’t know, but it’s troubling. I know that something is definitely bothering me about this. I can tell by the way I delayed getting started, until the reasons for my delay were outweighed by the embarrassment that I have access to a device that many crave and cannot get their hands on. I must go forward.

Yet, when I did my first insertion, I was using language that would make a sailor blush. I got even more surly as that first insertion didn’t work, because my brand new transmitter was crap from the start. Now I’ve used two transmitters and two (actually three, after working with technical support to get everything right) sensors with nothing to show for them. Finally, on the fourth try, I got it to start up and calibrate properly. But my issues, I fear, go deeper than a sensor insertion.

I think my problem may be the notion, the confirmation, that a CGM gives you data 24 hours a day, seven days a week. In other words, it’s a constant reminder that I live with diabetes, a fact I try to forget every day.

Yet, there’s no question. I must begin my CGM journey. As The Great Spousal Unit shared, and she was right: sometimes, I don’t want to believe what my numbers are without a glucose check. If I’m going to be such a slave to data (and you have to be one if you live with diabetes), sometimes I need data I can access even quicker than a BG check.

But it’s not easy, and I’m not entirely sure why. The trick right now, I think, is to make the physical effort to get started, and then over time, work on what my brain and my heart are trying to tell me.

I recently read a statistic sharing that adults living with diabetes are at least three times more likely to develop depression than other adults living in America. Depression isn’t exactly what I’m feeling. Still, I already know I have diabetes all day, every day… why do I have to wear something additional so I can be reminded of that? All day, every day?

Ultimately, I need to remember that this is a device that could save my life. And over time, I may actually get used to wearing it. I’ll know I’ve turned the corner when my desire to get the data overwhelms the desire to rip it off of my body for good.

Until then, the emotional price of data gathering seems awfully high.

Diabetes By The Numbers (Part 3): Christel Marchand Aprigliano and DPAC.

Time now for the third and final part of my conversation with Christel Marchand Aprigliano. If you haven’t yet listened to the first two parts of our chat, please go back after this episode and listen to them, because they are well worth your time.

In this episode, we talk about Diabetes Patient Advocacy Coalition, or DPAC. Christel and Bennet Dunlap started DPAC as a way to help amplify the voice of the patient to elected officials and policy makers. They provide a slew of tools that empower friends, family, and fellow advocates to take action on a number of diabetes-centric issues. Often, in less than one minute.

Note: I volunteered with DPAC in 2016, and plan to do so again in 2017.
Also, I should mention that this interview was recorded after the November 2016 election, but prior to the beginning of the 115th U.S. Congress in 2017.

Thanks so much to Christel for sitting down for this conversation. Enjoy, and get your advocacy on!
DBTN

Reference Material – Click below for more information on this topic

Christel Marchand Aprigliano writes about diabetes at:
ThePerfectD.com

You can connect with Diabetes Patient Advocacy Coalition, or DPAC, at:
DiabetesPAC.org

Recipe! Zoodles with shrimp and pesto.

Man, it’s been forever since I’ve posted a recipe. I’m a little rusty, but if you’ll allow, I’d like to give you this two part recipe involving my first foray into what The Great Spousal Unit likes to call: Zoodles. You know… those zucchinis cut up into something approximating spaghetti strands. Zoodles.

It’s something that’s burned into my brain now, so in the absence of anything else, that’s what I’m going with. This recipe includes grilled shrimp with mushrooms, shallot, and tomato, tossed in with homemade pesto.

First, let’s begin with the pesto. I don’t really know how to make pesto… I just read the back of a jar of pesto in the store and thought, “hey, I can do that”. So this is really an approximation.

I got out the mini food processor (one of my favorite kitchen gadgets), and combined flat leaf Italian parsley (just the leaves, not the stems), and fresh basil. To that, I added some shelled pumpkin seeds. In retrospect, I think pine nuts would work better, but I had pumpkin seeds, so I used pumpkin seeds. Then, a little salt and pepper, some lemon juice (from maybe about half a lemon), and olive oil. I ran all that through the food processor, then added a little freshly grated pecorino romano cheese. The goal at this point is to get it to a consistency something like this, while getting the taste exactly to your liking:
zoodles1
Meanwhile, I marinated the shrimp in a simple lemon vinaigrette, with salt and pepper. Nothing too out of the ordinary there.

After that, I just chopped up some baby portabello mushrooms, about half a shallot (it was a really big shallot), and one tomato. I tossed the mushrooms and shallot in a pan with butter and white wine. I don’t remember which white wine… it was whatever Maureen was drinking.
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I also got the shrimp on the grill (my new griddle/grill combo that fits right over the middle burner on my stove!). About two minutes per side max. They came out great.

At this point, I’ve also put the zoodles in a bowl with a little butter, a tiny bit of celery salt, and garlic. Then I cheated and put the bowl in the microwave to heat everything up. About three minutes was good. To finish up, I kept the zoodles in the bowl, and added the mushroom and shallots, the tomato, the pesto, and a little more pecorino romano.
zoodles3
On the plate, I can tell you that it tasted as good as it looked.
zoodles4
Estimated carb count per serving: How do I figure a carb count for this meal? I dunno… maybe 10g?

I don’t think this was the perfect interpretation of this meal, but one or two more tries and I might have a real winner here. All in all, it was delicious and mostly healthy. Have you tried something like this before? Have any tips?

Carb counts are estimates only. Check with a registered dietician to find out what a healthy carb count is for you.