Tag Archives: Diabetes Advocates

A Disclosure, an example, and a plea.

June 30, 2014 – 7:15 am

Today is a very busy day, so I’m just going to let you know about something important while I have a moment. I give you a disclosure, an example, and a plea.

I’ll be leaving early tomorrow morning, on my way to the Diabetes Advocates MasterLab in Orlando. Like I mentioned earlier, it’s a one-day advocacy workshop, and I’m looking forward to learning something new and getting my big A on.

I have to admit to being a little less than transparent about this trip up to now. I would have mentioned this earlier, but to be honest, I completely forgot about it. I haven’t really had to disclose this kind of thing before.

The truth is I’m going thanks to a scholarship provided by Diabetes Hands Foundation. If not for DHF, I wouldn’t be making this trip. I’m usually the guy helping others make a trip like this. But… a lot of unexpected things have happened here this year, and as a result, there’s very little wiggle room left in the budget. So thanks Diabetes Hands Foundation. I’m grateful, and I’m really pumped about this.
 
 
Leading up to the workshop, I performed my own bit of advocacy this weekend. This goes back to a post from early May where I talked about the infestation of those “Cash for Diabetic Test Strips” signs that have been popping up all over Baltimore. After I wrote that, I received a comment from Jeff Mather:

CommentJM

I’ve been thinking about Jeff’s comment. I think about it every time I see one of those signs. So when I was running errands on Saturday and I saw one of those signs, I took matters into my own hands:

Sign

I found two more on Sunday and added them to this one. I’m not sure about the measure of advocacy involved here, but I did manage to make my feelings known about this practice by doing something tangible.

The point here is, we don’t always need to come up with a great idea on our own. Sometimes, all we need to do is pick up on someone else’s idea and do the best we can. I really hope that there are no opportunities for diabetes advocacy where you live. That would mean that your D-world is fantastic and welcoming and helpful. Unfortunately, where the rest of us live, there are plenty of opportunities for advocacy. They aren’t all big, earth-shaking initiatives. But if you think about it, I think you’ll find a place where you can really make a difference.
 
 
You know, there are many (and by many, I mean a LOT) of great organizations that help make lives better for People With Diabetes, bring people together who are living with and affected by diabetes, and provide funding to help bring important innovations to the forefront that help us live longer, healthier lives with diabetes.

I encourage beg you to consider making a contribution to your favorite diabetes organization today. Whether it’s by volunteering, by making it your career, or by giving money, every small seed of support you plant today helps the Diabetes Community grow stronger and better tomorrow, and for many tomorrows to come.
 
 
Thank you. And enjoy your week!
 
 
 

By StephenS | Posted in Advocacy | Also tagged , , | Comments (1)

Advocates: You are making a difference.

June 20, 2014 – 9:28 am

I was riding down on the elevator after another day at work, when I heard something I’ve never heard there before. I saw him looking over at me, as I was leafing through the latest Baseball Hall of Fame publication, when he said…

“Is that… an insulin pump?”

There are roughly a thousand people who come and go from the building I work in each day. I’ve had the same insulin pump attached to me for over four years now. But no one has ever mentioned it or asked me about it before. In fact, none of my co-workers noticed it at all unless I mentioned it to them, even though it’s clipped to my belt and the tubing hangs out everywhere.

Anyway, I said yes, and he mentioned how he’s dealing with elevated glucose recently. He didn’t say Type 2, but as we spoke I surmised (maybe I shouldn’t have) that Type 2 is what he’s dealing with. I should mention that he’s very fit… way fitter than me… and he’s trying to find out everything he can about how to control his BG, and he wanted to ask me about my pump. We talked about our experiences a little while longer, and then both of us, without any prompting, practically blurt out the same things: Diabetes is weird, and it doesn’t act the same every day. A lot of people think that kids are the only ones with Type 1, and only overweight, unfit people have Type 2.

This struck me not so much because it’s true (which, sadly, it is), but because of the realization that times have changed if a near stranger understands this early in his (possibly) diabetic life.

Hey, there are still plenty of uninformed individuals out there, and we seem to remember who they are. Or what they say. But what about this guy? He hasn’t let anyone sell him a bill of goods. The information he’s getting is right, and he’s comfortable sharing.

Don’t get me wrong. I still saw the look in his eyes. The look that says he’s unsure how this is all going to turn out. Even when we’re riding high on the cusp of a sub-seven A1c or a Dexcom no-hitter, we’re still terrified of the possibility of complications and an early death.

But I was quite encouraged by the fact that someone took the initiative to find out more about what was happening to his body, and the information he gathered seemed to be pretty good so far.

We’re far from a perfect world where all People With Diabetes are accepted and treated with empathy and support, rather than derided and given misinformation. But every once in a while, it’s really nice to see that the message is getting through. So to all of you Diabetes Advocates out there working hard to bring a positive and true message to the diabetes landscape: Know that the word is getting through. Keep up the good great and amazing work.
 
 
”So shines a good deed in a weary world.”
Gene Wilder, Willy Wonka & The Chocolate Factory
(paraphrasing William Shakespeare, from The Merchant of Venice)
 
 
Diabetes Hands Foundation is offering a one day advocacy MasterLab on July 2nd at the Orlando World Center Marriott in collaboration with Children with Diabetes.

Registered participants in CWD’s Friends for Life conference are welcome to join the MasterLab as part of their FFL experience at no additional cost. Separate registration for the MasterLab is required.

Stand alone registration for the MasterLab is $50 per person.

Registration is free if you’re already registered for Friends For Life.
 
 
 

By StephenS | Posted in Advocacy | Also tagged , | Comments (3)