Author Archives: StephenS

Hello… I’m Stephen. I live in Baltimore, Maryland, USA with The Great Spousal Unit, Maureen. I’ve been living with Type 1 Diabetes since January 1991. I’ve been a pump user since April 2010, and I’m currently wearing the Animas Vibe pump. Also wearing the Dexcom G5 continuous glucose monitor.

I found the Diabetes Online Community in the summer/fall of 2011, and that discovery has changed my life. I started this blog in April 2012, and since then, my diabetes advocacy has continued to grow. Among other achievements, I’ve attended and spoken up at FDA workshops and participated in clinical trials.

I’ve been thrilled to serve as a facilitator for the Diabetes UnConference. And I’ve been honored to volunteer for Diabetes Patient Advocacy Coalition. You should Google both of those.

I’m currently serving as a member of the State of Maryland’s Advisory Council on Health and Wellness, where I am co-chair of the Diabetes committee. In addition, I’m part of the 2018 Reader Panel at Diabetes Forecast magazine.

I’m always searching for the perfect balance between the highs and lows of my blood glucose level and my life… always searching for the Happy Medium.

Anything you’d like to share? Please let me know… I’d love to hear from you.

Throw me a frickin’ bone here…

I was a victim of one of those stupid unexplained, recurring lows the other day.

Near the end of my workday, I had to excuse myself from a meeting and reschedule because I couldn’t focus. I knew something was wrong. A quick glucose check revealed a 47 mg/dL reading.

So immediately, I shut off my pump. I did not have any insulin on board at that time. I ate a fruit cup that was hiding in my desk drawer for just such an occasion, and just for good measure I ate a couple of pieces of candy too. Okay, three pieces.

I performed another check half an hour later (it’s supposed to be 15 minutes, I know, sue me), and I was at 170 mg/dL. This was at the end of my day, and figuring I was at a safe number, I turned my pump back on. I should also note that to err on the safe side, my basal setting between 4:00 p.m. and 6:00 p.m. is significantly below what my basal rate is at any other time of day, because that’s usually when I’m finishing up my day and traveling home.

I made it home, let the dog out, looked at the mail, and then did another BG check. Can you believe it?

52 mg/dL

I made my kicked-up ramen noodle recipe for dinner
, and due to the day’s previous events, I definitely under-bolused. Or so I thought. 2½ hours later? I was at 62 mg/dL.

Sometimes diabetes throws us a curve ball, and we need to try and deal with it the best we can.

It would be nice, however, if diabetes would throw me a frickin’ bone now and then.


 
 
 

Mostly, I’m grateful.

When I started this endeavor almost three years ago, I didn’t know if I would make it to five blog posts, much less five hundred. I knew from previous experience that I could write 500 different things, so durability wasn’t an issue. The real question was, would I even want to write as many as five hundred? Of course, I also wondered from time to time whether anyone would be interested in reading even one thing I might want to write about. For the record, I still ask myself those questions.

When I started Happy Medium, I had three ideas in mind. I refer you to my original post for the actual wording…

1. Stay humble. Don’t try to be a rock star. This rule is mostly so I can remind myself that no matter how big success is, it never seems to be enough. There really is a lot of truth and solace to be found in just doing the best you can. I do this for others and for me. It’s not my job. Keeping all this in mind frees me to write from the heart, and write the truth too.

2. Try to help where I can. It’s no secret that there’s a lot of need in the Diabetes Community. What’s the sense in being part of a community if you don’t contribute to it?

3. Enjoy the process. I love to write, and the idea that I can share information, tell my story, and advocate for others living with or affected by diabetes makes me feel more engaged, more useful.

How am I doing with all of those? The easy way out would be for me to say it’s up to you, the reader, to decide. But if I’m being honest with myself, I think I’m doing okay on Number 1, I could do more on Number 2, and Number 3? I still need to loosen up a bit. Trust me, I am working on it. I think the best way to describe it is to say that I’m content, but despite my best efforts, there are days when the unbridled enthusiasm for life I felt some years ago still eludes me. I haven’t yet figured out why.

I will admit that sometimes (like in this post and my previous one) I write primarily for myself. Fortunately, no one has castigated me for it yet. Some things I’ve been involved in have been great, like two different D Blog Check-in days, three different editions of Diabetes Blog Week, my attendance at the Manning Diabetes Symposium in 2013, and an FDA workshop last November. Other things haven’t worked out as well as I’d hoped, like when I went through JDRF mentor training two and a half years ago, only to be asked to mentor no one because people my age are almost never diagnosed with Type 1. I still get an occasional e-mail asking me to volunteer to be a mentor, and it’s kind of depressing.

I truly felt honored to participate in clinical trials over the past two years, and our Champion Athletes With Diabetes medals have been given to 26 brave souls so far. Each one of those stories warms my heart. In each letter I receive, I’m touched by how much people feel inside about something they are physically involved in.

In addition to writing, I love to cook too, and I’ve been able to post a few recipes. One of my most interesting learning experiences involved writing about living gluten free for a week as though I were newly diagnosed with celiac disease (for the record, I do not live with celiac).

I think it’s safe to say that all of these experiences, and so many more, would not have happened without first having learned as much as I have from others who also write about diabetes and advocate for others while living with this condition.

I have learned a lot through this experience. I’ve managed to embarrass myself once or twice. I’ve had the typical highs and lows. I’ve tried to be fair. I have also managed (crossing my fingers) to avoid some of the trolls who have been a pain to some of my other blogging friends.

What I don’t want to do is hang on too long. After 35 years or so, I want to continue to learn and grow as a writer, because I am totally self-taught, this is my first experience writing on the internet, and I’m sure there is much that I don’t know. If you have any suggestions, I’m all ears.

But I don’t want to write just for the sake of writing. I’m not closing up this blog just yet. But I’m thinking about it. Honestly, I always think about it. I think it’s right to examine what you’re doing from time to time, ask yourself whether you’re meeting your goals, and whether it really means anything at all. If I write for one more week or one more decade, I will probably continue to do this.

Mostly, I’m grateful that people engage with me through this medium honestly, sharing their feelings without reservation. I could and would still write without any feedback, but knowing you care about things as deeply as you do humbles me. So often, you make me want to be like you.

And if you’re out there thinking about telling your story, through a blog or Facebook or Twitter or some other avenue, my advice is: Yes, absolutely, do it. You will find it rewarding and cathartic. Like I said over a year and a half ago,
Your story is the most important one in the world to the person who is moved by it. Don’t let down the one person who needs to hear you.

I’m satisfied with my first 500 blog posts. But the fire in my belly says that I want to make each one from this point forward better than ever. Here’s to another… one, in a couple of days.
 
 
 

Photo Monday.

Click here to save children – Donate to Spare A Rose, Save a Child

SAR2015
 
This is a (nearly) completely diabetes-free post featuring some photos from my recent business trip to London and my two and a half day stay in Brussels. I’m posting these for myself as much as anything, but I hope you enjoy at least some of them too.

Quickly, the diabetes part: Being in big cities often means a LOT of walking. A lot of walking is still exercise, and I was caught off guard by a couple of lows during the trip. By the way, you should see Sarah’s super blog post at Coffee and Insulin on traveling or living abroad. Otherwise, this was a great experience for me, especially in Brussels where I didn’t speak the language but still managed to keep from getting lost or going hungry.

Here they are… first, the London photos, then the ones from Brussels.

Thanks for looking in. Have a great week!
 
 
London

A panoramic view of Paddington station.  I did not see any bears.

A panoramic view of Paddington station. I did not see any bears.

The Liverpool Street station.  This is Sunday morning, about the slowest time all week.  My hotel was very near here.

The Liverpool Street station. This is Sunday morning, about the slowest time all week. My hotel was very near here.

I actually ate Pheasant Curry... Seems pretentious, but it was also delicious.

I actually ate Pheasant Curry… Seems pretentious, but it was also delicious.

The Hippodrome Casino.  I may have gone inside.  I may have had scotch, neat.

The Hippodrome Casino. I may have gone inside. I may have had scotch, neat.

Picadilly Circus, about 11:00 p.m.

Picadilly Circus, about 11:00 p.m.

I stayed in a nice hotel.  this was one of many paintings on the walls there, and it always caught my eye whenever I walked past.

I stayed in a nice hotel. this was one of many paintings on the walls there, and it always caught my eye whenever I walked past.

St. Paul's cathedral.

St. Paul’s cathedral.

Covent Garden.

Covent Garden.

I thought if they tried to give a place in the USA that name, there would be protests night and day and half of the rednecks in the south would have Dirty Dicks t-shirts.

I thought if they tried to give a place in the USA that name, there would be protests night and day and half of the rednecks in the south would have Dirty Dicks t-shirts.

On the same note, I thought the shape of this building was a little phallic.  Beautiful, but phallic.  Anybody want the office on the top floor?

On the same note, I thought the shape of this building was a little phallic. Beautiful, but phallic. Anybody want the office on the top floor?


 
 
Brussels

Looking down the Rue de la Regence, toward the Palais de Justice.

Looking down the Rue de la Regence, toward the Palais de Justice.

The Belgium parlaiment building.  That's the Belgian flag on the left, and the European Union flag on the right.

The Belgium parlaiment building. That’s the Belgian flag on the left, and the European Union flag on the right.

The Parc de Bruxelles.

The Parc de Bruxelles.

There are city bike stands all over the city.  When I saw this view, I just wanted to get on a bike and ride it all over.

There are city bike stands all over the city. When I saw this view, I just wanted to get on a bike and ride it all over.

Shoppers at Les Galeries Royales Saint-Hubert.

Shoppers at Les Galeries Royales Saint-Hubert.

DSC02010

Grand Place.  This area is extremely touristy.  But the archetecture is astounding.

Grand Place. This area is extremely touristy. But the archetecture is astounding.

The world famous Mannekin Pis.  Meh.

The world famous Mannekin Pis. Meh.

Looking up through Mont des Arts toward the Palace Royale.

Looking up through Mont des Arts toward the Place Royale.

Looking in the opposite direction, from the palace side.

Looking in the opposite direction, from the palace side.

Place Royale

Place Royale

The fellow working on my delicious dinner one night.  Even the Thai take-out food is awesome here.

The fellow working on my delicious dinner one night. Even the Thai take-out food is awesome here.

From my taxi to the train station, my one and only view of the EU general assembly building.

From my taxi to the train station, my one and only view of the EU general assembly building.


 
 
 

Still time to #SpareARose.

Click here to save children – Donate to Spare A Rose, Save a Child

SAR2015
 
As we approach Valentine’s Day, let me remind you that this is the perfect time to help save the life of a child living with diabetes in a developing country.

I’m so lucky… I got to make a trip to Europe, and never once had to worry about my insulin needs. Others, children in fact, do not have this luxury.

Insulin should not be a luxury.

Make a donation now to the International Diabetes Federation’s Life for a Child program, and help ensure that children live. Just five dollars buys a month of insulin for a child in the third world.

There’s also an option that allows you to have a donation made on your behalf on a monthly basis throughout the year. In “Save the Children” terms, that’s just 17 cents per day to help give a child a chance at the life they deserve.

We never know how children will grow up. How many Ghandis or Mandelas are out there waiting to be discovered? With your help, they can get their chance to shine.

For People With Diabetes, insulin should not be a privilege; it should be a right. Help maintain the right to insulin for Children With Diabetes by making your donation to the Spare A Rose, Save a Child campaign today.
 
 
 

Wordless Wednesday: Innovation and Inspiration.

Click here to save children – Donate to Spare A Rose, Save a Child

SAR2015
 
I was in Brussels, waiting to board the train back to London. Already through the UK Border checkpoint, most everything on the other side was Great Britain focused. On a TV screen, a promotional video was in a constant loop, promoting the work of the UK Trade and Investment office. That’s where I saw this:

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Did they intentionally leave the last digit off?

Who knew the Brits were at the forefront of AP research? Frankly, I don’t care who takes credit for it. I just want it for patients NOW!

If you’re really interested, the full video is right here… the AP portion is near the end, at around the 2:43 mark: