Author Archives: StephenS

Hello… I’m Stephen. I live in Baltimore, Maryland, USA with The Great Spousal Unit, Maureen. I’ve been living with Type 1 Diabetes since January 1991. I’ve been a pump user since April 2010, and I’m currently wearing the Animas Vibe pump. Also wearing the Dexcom G5 continuous glucose monitor.

I found the Diabetes Online Community in the summer/fall of 2011, and that discovery has changed my life. I started this blog in April 2012, and since then, my diabetes advocacy has continued to grow. Among other achievements, I’ve attended and spoken up at FDA workshops and participated in clinical trials.

I’ve been thrilled to serve as a facilitator for the Diabetes UnConference. And I’ve been honored to volunteer for Diabetes Patient Advocacy Coalition. You should Google both of those.

I’m currently serving as a member of the State of Maryland’s Advisory Council on Health and Wellness, where I am co-chair of the Diabetes committee. In addition, I’m part of the 2018 Reader Panel at Diabetes Forecast magazine.

I’m always searching for the perfect balance between the highs and lows of my blood glucose level and my life… always searching for the Happy Medium.

Anything you’d like to share? Please let me know… I’d love to hear from you.

Recipe!

Wow, it was all the way back during D-Blog Week that I last posted a recipe. But we made fish tacos (okay, fish tortillas… you work with what you have) this weekend, so I decided to take a picture and share our recipe. Not much to it, but oh, so good.

Fish Tacos

We used the White Ruffy fillets that come in a frozen package out of the seafood case at Trader Joe’s. But any mild or semi-mild fish will do: tilapia, grouper, even trout. The fresher the better. About a 1/3 to 1/2 pound fillet will do for two people.

Start by preheating your oven to 375 degrees (farenheit).

Then get three bowls together.
One for cornstarch, about 1/2 cup
One containing an egg wash, with about 2 or 3 teaspoons of milk
One with 1/2 to 3/4 cup of corn flakes, 1 teaspoon of salt, and one additional ingredient. You pick. A little chopped dill, or red pepper flakes, or something else. We used a rounded teaspoon of Old Bay seasoning.

So take your fillet and dip it into the cornstarch first. Then shake the fillet until the excess cornstarch falls off. Then dredge the fillet in the egg wash. Once you’ve soaked it in the egg wash, drop it into the corn flake mixture. Be sure to cover it on all sides. If you like, you can spray it with a little butter-flavored cooking spray (which has no cholesterol, by the way).

Put it into the oven for about 15-18 minutes, give or take a few. Just make sure it’s cooked through. While it’s baking, get your filling together for your tacos. For us, that included:

Romaine and leaf lettuce from the garden (it does NOT get fresher than that)
Chopped green onions (where I grew up, we don’t know from scallions)
Diced tomatoes (these were kumato tomatoes, which taste a little more like a tomato at this time of year, if you know what I mean)
Diced avocado– put some lime juice on it after dicing. It will keep the avocado from turning brown, and add some fresh zing to your taco
Salsa
Sour Cream
Shredded Cheese

Once everything is complete, just dice up your fish and add your favorite ingredients. Hope your fish taco night is this good!

Total estimated carb count: 28 grams (21 grams in the tortilla– the rest is tomato and the breading)

Carb counts are estimates only. Check with a registered dietician to find out what a healthy carb count is for you.
 
 
 

The ride– final thoughts.

I’ve already talked too much about last Saturday’s ride. So, sorry in advance for this long post. Sometimes you just have to get things off your chest before you can move on, you know? So here are some final thoughts on the 100 mile ride.

I can’t tell you how much fear I was feeling at the start. It was a combination of too little sleep and unfamiliar surroundings.

And this: Last year, while I was training for a triathlon, I had a bad fall off of my bike. No broken bones, but a concussion that put me out of work for a week. Honestly, I don’t know how football players do it. My head didn’t stop hurting for six days. I couldn’t concentrate, couldn’t focus. As you can imagine, it scared me. Before the crash, I rode without a care. I wanted to go fast, turn hard, push my limits. After the crash, I was afraid of every downhill, every little bump in the road. Always on the brakes.

I related this fear to my nephew while he was tuning up my bike a few days ahead of the ride. He paused for a moment, then said “A hundred miles oughta take care of that”. He was right.

The longer I rode, the better, the stronger, the more in control I felt. I probably went fastest when I was on my own on the course. I learned a long time ago that the only way for me to overcome my fear was to confront it. Either it would best me or I would best it. And I usually emerged victorious. That’s exactly what this ride did for me. No more worries. I’m ready to train hard again.

By the way, it’s ridiculous how many new elements there were to this ride for me. A new seat (a little wider, a little softer, very comfy too). An extra water bottle. Carrying extra carbs with me. It must have been comical watching Maureen stuff granola bars into the pockets of my jersey, and then watching me take them out. This must happen for parents of CWD all the time.

“Here, take these with you”.

“Honey, the rest stops are close together and I’m already carrying all this other stuff”.

“I just want you to be safe”.

This was the first event with my feet clipped in, instead of going with running shoes and toe cages on my pedals. And let’s not forget that this was the 1st event ever where I wore my pump instead of disconnecting.

All of that is a lot to process. So I didn’t. I just had to trust that everything would work as designed. And it did, until I fell apart after the finish.

And the thing is: I really felt pretty good up to that point. Tired, yes. I felt like I had ridden 100 miles, but as I crossed the finish line, I remember thinking I could probably just ride my bike up to where I was staying, about 1/2 mile away.

I like to think I’m a spiritual man, but not religious. The Holy Trinity and I don’t stand on ceremony. I want to have a relationship with my God and Savior, but doctrine and dogma aren’t my thing. Just before the start of the ride, I said the same prayer I always say, asking Him to keep us all safe from incident and injury as long as we ride. And He did. Of course, once I finished the ride, I collapsed. Lord, why do you interpret things so literally sometimes? Of course, He delivered me into the hands of capable people who were able to help me when I needed them. So there is that.

In the end, after worrying the most about how to manage my diabetes during this event, my diabetes was really a non-issue. Great BGs all day. So while I have some work to do to keep from suffering the dehydration I suffered, I guess there’s a message there that I did accomplish something big for me, and I did it in spite of my diabetes. And my fear. Excuse me, but I really get a charge out of something like that.
 
 
 

Finally… photos from the ride.

It’s been an extremely busy week. I haven’t had a chance to get much posted this week, and I have a lot to get off of my chest, and it’s frustrating me. And I’m still busy. So I only have time right now to post those photos I’ve been promising since Monday. Have a great (and restful) weekend!

All photos are courtesy of The Great Spousal Unit.

Before the race. See that look on my face? That’s 50% sleep deprivation, 50% abject fear. Can I make it 100 miles?


 
 

Looking everything over one more time. I didn’t know then that this bike would be an absolute gem all day long. Smooth as silk.


 
 

The crowd at the start of the Century (ride). Smaller than I remember.


 
 

At the start… I’m trying simultaneously to get clipped into my pedals and keep from getting run over.


 
 

The next time someone with a camera caught me, at the mile 80 rest stop. If you look closely, you can see the Chesapeake Bay in the reflection off of my sunglasses. Obviously, I had no idea of the hell that was to come.


 
 

This is the hell that was to come. Only 20 miles later, I collapsed just past the finish line. This photo was taken about 10 minutes before I was taken to the ER. I can’t believe how pale I look here.


 
 
 
 

Like these links.

Yeah, yeah… I know I was going to post some photos from my ride this past weekend. But because I’m still looking for some web-worthy photos, and because WordPress was in a funk last night, I’ll just share these links with you. Inspirational stuff.

Some reports from the American Diabetes Association’s 72nd Scientific Sessions in Philadelphia are in…

First, from Christopher at A Consequence of Hypoglycemia, who works with the ADA. He has several posts, so I’ll just link to his main page:
A Consequence of Hypoglycemia

Amy at Diabetes Mine has a great recap of the company updates from the Expo Floor:
http://www.diabetesmine.com/2012/06/ada-2012-diabetes-company-updates-from-the-expo-floor.html

And I can’t get enough of reading about all of the awesome PWDs who are also bike riders, including three from the same Tour de Cure ride…

Jeff Mather of Jeff Mather’s Dispatches:
Jeff Mather’s Dispatches

Scully at Canadian D-Gal (two posts):
http://canadiandgal.blogspot.com/2012/06/twin-cities-tour-de-cure-part-1.html
http://canadiandgal.blogspot.com/2012/06/twin-cities-tour-de-cure-part-2.html

And Scott Johnson at Scott’s Diabetes:
http://scottsdiabetes.com/2012/06/pedaling-sleep-100-mile-ride/

Finally, Liz at Welcome to my Diabetic Life was in the Long Island Tour de Cure this past weekend. Congrats on a great ride!
http://www.welcometomydiabeticlife.com/2012/06/i-did-it.html

I’m still working on the photos of my ride. Hopefully, I’ll have them up soon. In the meantime, enjoy the day!
 
 
 

100 Miles. Stick a fork in me.

This past weekend was my big event for the year. Bike Ride. 100 Miles Saturday, 50 miles on Sunday. Or maybe just 100 miles on Saturday…

After finishing my 100 mile ride (!) in sunny, 90 degree, 75 percent humidity weather, I stopped to receive my medal for finishing, and then collapsed. About 15 minutes later, I hurled. About 15 minutes after that, The Great Spousal Unit decided that I needed to go to the ER. So I spent a few hours at Chester River Hospital Center getting nearly four liters of intravenous fluid pumped into my body. On top of that, I had a potassium count that was way too high, and that had to be remedied.

Needless to say, we decided to bag the Sunday ride, pack up our stuff, and drive home Saturday night.

How did it get to this? How did I finish the ride, then fall apart? Let me count the ways:

1. I only got about an hour and a half’s sleep on Friday night, thanks to a scummy dorm room at Washington College. Great to get riders hooked up with low price housing for the event, but the dorms were awful. I expected typical college dorm room ambiance, but these rooms were nasty. We were afraid to sit on the furniture, let alone sleep in the beds. Made our decision to leave a day early much easier.

2. I was part of the largest team in this event. A friend of mine was volunteer of the year last year, and since this was about the fifth year she asked me to ride, I finally decided to do it. What does that have to do with it? Well, early on a lot of us (10 or 11 of us) got into a pace group, where the person at the front helps pull the line of riders along, then drops back, and the next person takes over for a while. It really helps everyone behind the leader conserve energy. I planned to stay with this group until mile 80 or so, especially since they were making decent time early on. But here’s the problem: when you have 10 or 11 riders, of different levels of fitness, your group can’t maintain a workable pace for long. On top of that, when that many people go into rest stops along the way, they take a long time leaving. Too long. As the day wore on, it was clear that their pace wasn’t working for me. I left them around mile 45. (Note: many in this group dropped out of the ride along the way, and only about 5 of them finished about 1/2 hour behind me).

3. I stayed very hydrated… all day… really. Drank one bottle of 1/2 water, 1/2 Gatorade between each rest stop; and a full bottle of water after arriving at each stop. There were rest stops about every 12 or 13 miles along the route. I also had a banana at every other rest stop. When we were talking about it later, it became obvious. I had pretty much eliminated the salty carbs from my diet the past two weeks. And I skipped all of the salty stuff they were handing out during the ride. Because it was a hot day with a minimal amount of shade, no matter how much I drank, it wasn’t going to be enough. I was just sweating it right back out again. Some extra sodium would have helped me hold some of that in longer. Four liters of fluid post-race told me that. Sorry to be gross, but here’s the evidence: At the stop at mile 49, about 11:00, I stopped to pee. I didn’t pee again until about 9:15 that night.

4. I tried too hard at the end. Mile 90 was the last rest stop. I made a quick stop, then I was back at it to the finish. I knew I was tired, that my quads were barking, but I just felt that this was the way you felt after 90 miles. Also, I was running way later than I thought I should be. I didn’t want to have the embarrassment of being pulled off of the ride when they closed the course (turns out, I was way ahead of that). But I was definitely thinking that the sooner I got going, the more mileage I put behind me, the better my chances were that I would finish. Add to that the fact that I am always a strong finisher who’s fastest hundred yards are often the final hundred, so to speak. I probably pushed way too hard in the final few miles.

So that’s the story. I loved doing the ride, but in the end, it’s probably my last 100 miler. Metric centuries (63 miles) are probably all my 50 year old body can handle now. Here was the exchange between Maureen and I Saturday night:

The Great Spousal Unit: So what have you learned from this experience?
Me: One Hundred miles? Never again.
TGSU: Damn Skippy.

Now, a few more points about the experience:

– Maureen was fantastic again. She was up with me at 5:00 a.m., she volunteered all day at the 80 mile rest stop, she stayed with me at the hospital, and then she drove all the way home Saturday night. She’s right when she says, “I get first refusal on your next big exercise thing”.

– The local medical staff on hand for the event? Not so great. One helper (I think he was a helper), who was nice, helpful, but couldn’t do much, because he didn’t have any authority. And one doctor, who, while I was convulsing in the grass after the finish, wanted to explain how I probably don’t have type 1 diabetes at all, because they probably didn’t know enough about it then, and if I exercised enough and maintained a proper diet, I could probably go off of the pump, and possibly wean myself off of the insulin. Really? Now, while I’m gasping for air and my quads are spasming? I looked at him, and gasped six broken words… “21 years. Type 1. Trust me”.

– Temp basal rate for the event: 0.575 units per hour, for 9 hours. Worked great. BG at mile 49 (lunch stop): 140. BG at mile 80: 130. BG right after the ride: 160. Thank you Dr. Pao.

– On the other hand, the medical staff on hand that were hired by the event promoters? They were great. Asked the right questions, gave me the right answers, without a lot of medical double-speak crap. Even helped transport me to the ER, which I’m sure is not in their job descriptions.

– By the way, at the hospital I learned that there were 5 or 6 other riders who were being treated upstairs, all worse off than I was. Doesn’t make me feel any better about my experience; but yeah, it sort of does.

– Okay, seriously… I know how bad I felt when they wheeled me in there (literally). I really, really feel bad for those people if they were worse off than me.

– The staff at Chester River Hospital Center were Sen..sa…tion…al. Sensational. Very attentive, very helpful, asked all of the right questions. We were definitely in good hands. Thanks.

– All of the volunteers at the rest stops were nice, and helpful, and giving, all day long. Sometimes in the direct blazing heat with no shade. That kind of job is way harder than you can imagine.

– When you do a long ride like that, the crowd gets pretty thin at the end. In the last 40 miles, there were a few times where I would go 30 minutes at a time without encountering another rider. Just going along by myself. For the first time, I really had to rely on my cue sheets and the signs volunteers put up at intersections. Again, thanks volunteers.

– I always seem to forget until I’m out there, but Maryland’s eastern shore is just beautiful. Early on in the ride, I saw an eagle at one of the rest stops. A golden eagle, I think. Later, a blue heron flew right over us. And near the end, around mile 85 or so, a big bald eagle swooped down over a farmer’s field and up into a tall tree. I think that picked up my spirits enough to keep me going the rest of the way. Coming back into Chestertown at the end of the ride, you ride along the river, past the marinas, and through their beautiful little downtown. Definitely worth the visit anytime.

So when I think back, I think, “Wow, I can’t believe I did that”. But I’m also glad it’s over. I was going to post some pictures, but this post is long enough. So I think I’ll put those up tomorrow.