Monthly Archives: February 2016

Not a schmuck.

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Today, I finally got around to making my donation to this year’s Spare a Rose, Save a Child campaign.

I consider myself very fortunate, because sometimes I have a few dollars to spare to donate to worthy diabetes-related causes. More importantly, even if it were a real stretch, I would still want to find a way to give to Spare A Rose.

That’s not because it’s visible right now, it’s not because it’s the flavor of the month, it’s not because people I know and like are involved.

It’s because Spare a Rose, Save a Child saves lives.

The bad news: Children diagnosed with or living with diabetes in a developing country can die without access to the insulin, meters, test strips and more that are part of my simple, everyday management of this chronic illness. Why should those kids be left out? Why should they be denied the very things that will keep them alive?

The good news: I can do something about it. I can’t get CGM approval for Medicare patients approved all by myself. I can’t keep companies from marketing cinnamon/okra/yogurt treatments or “diabetic socks” all by myself. I can’t cure this stupid condition all by myself. But I can, all by myself, make a contribution that will make a measurable difference in the life of a child who could die without my intervention.

That’s pretty powerful stuff.

It’s a simple idea. The cost of one rose on Valentine’s Day? That’s about the cost of one month’s worth of life-giving insulin for a child living in a developing country. The International Diabetes Federation’s Life for a Child Programme has boots on the ground in those countries, saving lives where they otherwise would be lost. Partnering for Diabetes Change helps gather donations through the Spare a Rose, Save a Child campaign and get them to the IDF.

Look at the next child you see. Imagine that child not having access to the insulin they need to life the life they deserve. Then imagine what you can do about it. I’ll bet you can come up with something.

Giving to Spare a Rose, Save a Child means I’m more than just a schmuck with a blog. It means I’m a schmuck with a blog who’s a life saver too. Not the butterscotch kind, though those are pretty good. Think of yourself as the kind of person who saves lives. Then go do it. Give, so children can live.

CLICK HERE or on the banner above to donate to Spare a Rose, Save a Child.
 

Like these links.

“They” like to say that all news is local, and in this case, the diabetes news is mostly local. Or at least local to where I am. Let me explain…

There is still time to register for the Diabetes UnConference, March 10-13, in Las Vegas. But even if you’re not attending, if you’re local, you can still attend the free Friday pre-UnCon sessions.

Want to explore sugar surfing with Dr. Stephen Ponder? Take a little time to go to advocacy boot camp? Want to check out the iLet? These sessions and more are open to the public on Friday, March 10. They are free of charge, but seating is limited. To secure your spot in one of the informative pre-UnCon Friday sessions, CLICK HERE.

Disclosure: I am part of the team of facilitators at the Diabetes UnConference in Las Vegas.
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If you’re living in the Mid-Atlantic, don’t forget about the JDRF Type One Nation DC Summit, happening March 5 in Bethesda, Maryland. This is another free event where you can get the latest on research, advocacy, and more. JDRF President and CEO Derek Rapp will give the keynote address this year. Gary Scheiner will be back, this time to talk about managing those pesky post-meal glucose spikes (guilty as charged). Tidepool’s Howard Look will be there, and if you haven’t yet heard him speak, you should. Cynthia Rice will cover advocacy for you, and the amazing Joe Solowiejczyk will be there to cover Diabetes and the Family: Making it Work for Everyone. All of it will be moderated by the fantastic Stefany Shaheen.

It promises to be another full day of information sharing and bonding with others touched by Type 1 Diabetes. For all of the information on the JDRF Type One Nation DC Summit, CLICK HERE.

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If you’re living in the Mid-Atlantic and you’ve somehow missed the notices about the Children With Diabetes weekend in Falls Church, Virginia April 8-10, consider this your fair warning. Think of this as a scaled down version of the Friends for Life conference that Children With Diabetes puts together in Orlando each July. And yes, there is plenty for adults as well as kids during this event. It’s for only one weekend, but there will be a number of topics presented by so many people who really know their stuff.

Gary Scheiner will be at this gathering too… Bennet Dunlap and Christel Marchand Aprigliano will lead three advocacy sessions, the last of which will include a panel discussion on artificial pancreas technology that includes Dr. Ed Damiano and Molly McElwee Malloy… and the Nightscout team will be there to tell you more about CGM in the Cloud, and even help you set it up for yourself. And that’s just a little of the incredible weekend that is to be in Northern Virginia April 8, 9, and 10.

To get more information, and to register for the FFL Falls Church weekend, CLICK HERE.

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Finally: Remember that HealtheVoices conference I went to last April? It’s coming back, April 15-17 in Chicago. Plenty of advocates living with numerous chronic conditions will gather and share and talk about how they get their advocacy on in their patient communities. This gathering helped me get the ideas to get my podcast off the ground last year, and I’m looking forward to what this year’s event will bring.

The best part? YOU have a chance to go too! Janssen Pharmaceuticals, which hosts the event, is taking applications from patient advocates who want to attend the conference right now. But they will only be accepting applications until February 22… so get there and get your application in today. To learn about HealtheVoices16 and apply for a scholarship to attend, CLICK HERE.

Disclosure: Janssen paid for my travel and accomodations to attend the 2015 HealtheVoices conference. All opinions are my own.

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As usual, March and April will be very busy months in the diabetes world. I hope you can make one or more of these important gatherings. Have any questions about any of them? Let me know.
 

I need to write a letter.

A little noise came about earlier in the week when people noticed that the stock price of Eli Lilly & Company, a large producer of insulin, had slipped six percent in a single day due to concerns that complaints of price gouging could ultimately hurt their bottom line. According to the Nasdaq report, the price of Humalog increased 10% just in the past quarter alone.

A lot of people focused on a quote from Lilly’s CEO, John Lechleiter, who, in the company’s quarterly conference call, when asked about the big increase in the price of Humalog, said that while the treatment is costly, the disease itself is a “lot more expensive.” Well, thanks a lot for that. Part of why it is expensive is because of Humalog. I think that’s what he was saying there, right? The disease itself is a “lot more expensive”, so the price of Humalog shouldn’t be a concern then, m’kay?

But it was a similar comment on the call from Jan Lundberg, Ph.D., Executive Vice President of Science and Technology, and President of Lilly Research Laboratories, that made me cringe the most. He was asked by an analyst about the “drug pricing debate”, the upcoming elections in the USA this November, how he had mentioned earlier that the industry was beginning to defend itself regarding pricing, and how he sees it all playing out over the next few years. Here is part of his response:
 
 
“In terms of what we can expect after the election, anybody that thinks they can predict the nominations, much less the election right now, I would love to talk to them. But I think this is going to continue to be an issue, or it’s going to continue to be on the radar screen because of demographics. And to some extent, as people get older, they are going to be more and more reliant on our medicines. I think we’ve got to continue to demonstrate that there’s value in the medicines we bring. Yes, they can be expensive, but disease is a lot more expensive. And emphasize the fact that low-cost generics, which account for over four out of five prescriptions today, represent ultimately the legacy of these investment efforts on our part, and provide the American consumer with tremendous value. So I think you can assume the industry is going to continue to maintain an active dialogue with each of the candidates, and to work across party lines to make sure that the views that ultimately translate into policy — and that’s what we’ve really got to be focused on — remain balanced and factual over time.”
 
 
Last time I checked, there were still no generic insulins available on the market, nearly 100 years after the discovery and implementation of insulin as a means to keep People With Diabetes alive.

Just trying to remain balanced and factual here, folks.

So, that really bothers me… the clearly false dialogue that it’s okay to overcharge patients for drugs they cannot do without, because there will eventually be generics available, which there won’t. Ever, without a fundamental change in policy at the governmental level. For heaven’s sake, Humalog was approved for use in the USA nearly 20 years ago.

That’s the frustration. What can I do about it?

I don’t know if there’s much I can do about it at all. But I know what will make me feel better. I need to write a letter.

I say a letter because on the Eli Lilly website, there is not one single e-mail address available. But they did publish the address of the home office in Indianapolis.

Do you want to write a letter too? Does this comment bother you enough to voice your concern?

Address it to:
Jan Lundberg
Lilly Corporate Center
Indianapolis, Indiana 46285 USA

Use your words. Tell your story. Be fair. Be kind. Above all, speak from the heart.

I will be putting together my own message, which I’ll share once it’s sent. I don’t know if it will do any good, but I know it will make me feel better. And it can’t hurt.

It should be noted that Eli Lilly & Company provides a lot of insulin to the IDF’s Life for a Child Programme, which also is helped through donations to Spare a Rose, Save a Child. So we’re on the same team there. Lilly helps provide assistance for people having trouble meeting the cost of their medicines. All initiatives that deserve praise.

They also have an executive who made a disingenuous comment on their most recent quarterly conference call, and that should be noted as well.
 

Diabetes Podcast Week! With the vivacious, committed, and reliable Merle Gleeson.

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You read that right… it’s Diabetes Podcast Week!

Brainchild of Stacey Simms at the Diabetes Connections podcast, this is a week where a dozen diabetes podcasters will be uploading new episodes and helping to raise money for the Spare a Rose, Save a Child campaign. Listen to the beginning and the end of today’s episode of Diabetes By The Numbers for more information on the Spare a Rose, Save a Child initiative and what an amazing difference it makes for children living in developing countries throughout the world.
Insulin should not be a luxury.

Today’s episode of Diabetes By The Numbers features the Superwoman known to her friends and compatriots as Merle Gleeson. In our opening round question, she describes herself as vivacious, committed, and reliable. She’s that and a lot more.

Merle has been living with Type 1 Diabetes for over 50 years. She’s also a Champion Athletes With Diabetes medal winner. Around nineteen years ago, her and a few friends started something called the Type 1 Diabetes Lounge, which holds regular meetings, fundraisers, parties, and more in the Chicago area. It’s quite an operation, and if you’re looking to kick start a local diabetes meetup or amp up the meetup you already have, you can do a lot worse than listening to Merle.

Here then is my conversation with Merle Gleeson, and a special message about Spare a Rose, Save a Child.
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Help save the life of a child living with diabetes in a developing country by donating to the Spare a Rose, Save a Child campaign today: www.p4dc.com/spare-a-rose/give/
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Reference Material – Click below for more information on this topic

Merle Gleeson is founder and CEO of the Type 1 Diabetes Lounge in the Chicago area:
type1diabeteslounge.com/

More about Diabetes Podcast Week can be found at Stacey Simms’ blog:
staceysimms.com

Spare a Rose, Save a Child is an initiative of Partners for Diabetes Change. To find out more about Spare a Rose, Save a Child:
www.p4dc.com