Endo recap.

Can’t believe that I’ve let almost two whole weeks go by without mentioning something about this. Too busy with other things, I suppose.

Here are some random moments from the appointment with my fabulous endocrinologist a couple of weeks ago:

– Hemoglobin A1c was pretty good. I’m again in the range where she’s worried that I’m encountering too many lows. It still feels weird after so many years of “Your numbers need to come down” to hear “This is a little lower number than I would like to see”.

– After reading about my adventurous week in January, she asked if I’m still eating gluten free. Umm, no… I’m not. But I do dig the pizza that I made, and the bread, and I felt pretty good that week, so if I can afford it, I’ll probably be doing at least some gluten free meal making in the future. Also, I’m eating a lot of salads right now, and I’ve been looking for gluten free salad dressings (Wish Bone makes some good ones).

– We talked about infusion sites. I had a stubborn high BG episode a few days prior to the visit, and we talked about whether it might have been site-related. I’m convinced that it was insulin that went bad after five days hanging on my hip. But I finally remembered to ask her opinion about whether sticking to the FDA-mandated 3 day limit to infusion sets would cause me to have too much scar tissue over time, as opposed to what I do now: keep the thing in until the insulin is gone (usually 4-6 days). Her opinion? If I’m careful about rotating my sites, I shouldn’t have to worry too much about changing out every three days. And there’s no evidence that keeping a set in longer is doing me any good anyway. I may have to rethink my position on this one.

So in conclusion: I have to tweak my basals ever so slightly, and stop aggressively blousing at every opportunity. I like eating gluten free, but haven’t moved all the way there yet. And I should consider going back to site changes every three days. Oh, and my other lab work came out okay too. No liver, cholesterol, or thyroid issues. I’m good for another three months!

Of course, I still have plenty to work on in the meantime.

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  • scully  On March 28, 2013 at 2:45 pm

    wow… a great endo? what is that? LOL
    sounds like you had a good appointment.

    a friend of mine (who is a CDE) told me that the little plastic tubing gets clogged after 3 days. Something to do with the insulin and the plastic. It’s like they make it so that it messes up after 3 days. I used to refill reservoirs and continue on with same tubing and infusion sets. After I took her advice and quit doing that I found it much better on my body. I should really do more research on this 😉
    send me your good endo vibes for Monday!


  • Jocelyn Foster  On March 28, 2013 at 3:43 pm

    Glad to hear that your Endo appt went well. Interesting about the sites. I usually go 4 days with no issues. I have gone 5 a couple of times and things seemed to head south from there. I find the hardest thing is calculating the right amount of insulin to last the three or four days, I don’t want to waste any!


  • Scott K. Johnson  On March 28, 2013 at 7:06 pm

    Yay! Always love hearing that an endo appointment went well!


    • StephenS  On March 28, 2013 at 11:46 pm

      Scott: Thanks, I love my endo. It makes a huge difference when you find someone who speaks your language and lets you be yourself.

      Jocelyn: You’re the second person I’ve heard describe what you’re talking about. I always have the most trouble in the first 12 hours after changing sites.

      Scully: On Monday with your endo, just be yourself. No, really… just be yourself. I hope it goes great.


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