Tag Archives: patients

People with Diabetes need a seat at the table– Sign this petition NOW.

Your help is needed right now– this minute. Take five seconds to go to Change.org and sign a petition urging the U.S. Food and Drug Administration to hold a patient meeting on Diabetes.
 
 
The backstory, from DiaTribe, who is sponsoring the petition:

“The Food and Drug Administration has begun to hold a series of patient meetings to gain a better understanding of specific diseases. Over the next five years, the agency plans to conduct at least 20 such meetings on conditions ranging from Chronic Fatigue Syndrome to Narcolepsy to Irritable Bowel Syndrome.

But not diabetes.

That is unacceptable.

Four “slots” remain open, and we want the FDA to add diabetes to its meeting docket for 2013.”
 
 
It is well known that 26 million Americans are living with diabetes. Nearly 80 million more in my country are at risk of developing diabetes. Despite years, even decades, of advances in care, therapy, drugs, and technology, more people are affected by this disease than ever before.

Not only that… Consider the fact that the federal government was on the hook for over 60 percent of the cost of diabetes last year. In case you’re wondering, the government’s tab amounted to nearly 152 billion dollars. By my definition, that amounts to an epidemic and a fiscal crisis. At the very least, it is proof positive that People With Diabetes need and deserve more attention. Over 3,000 people so far agree with me. Will you be next?

Be one of 5,000 or more to sign the petition. Help People With Diabetes send a clear message to the FDA.

We matter.

We will not be ignored.

Go now, and sign the petition:
http://www.change.org/petitions/us-food-and-drug-administration-sponsor-a-patient-meeting-on-diabetes?q=petition

 
 
 

Like these links.

Happy Wednesday! Are you among the many in the diabetes online community sharing your story with the rest of us? Have you thought about sharing your story with the rest of us?

Then this is just for you:

 
Karen at Bitter-Sweet is doing all of the hard work on this project, and all she asks is that you write something every day for a week. And then share it. Are you in?
 

Scott S at Scott’s Web Log has another timely post, asking us to help kill a bill in congress that would allow companies to charge for access to taxpayer-funded research:
http://blog.sstrumello.com/2012/05/kill-this-bill-in-congress-research.html
 

And finally, a couple of links from a couple of AWESOME cyclists! These two keep me inspired to continue my training for next month:
I’m So PUMPED!
Canadian D-gal
 

Enjoy!

 

 

 

 

 

 

 

A Disclaimer
I have no medical training. If you consider anything written here as medical, legal, financial, or any other kind of advice, you’re out of your mind. Please speak to a learned professional before making any changes that might affect your health. Any of the original content found on this site is my property and should not be reproduced, copied, or otherwise used without the author’s expressed written consent.

Like these links.

Happy Wednesday! Here are some interesting posts that spoke to me in the past few days:

Scott at Scott’s Web Log has a sensational, informative post asking:  Do YOU know how to check the FDA’s website for recalls?
http://blog.sstrumello.com/2012/04/do-you-know-how-to-check-fdas-website.html

 

Mike Hoskins owns up to being a Tom Petty fan, and shares how a moment of serendipity helps remind him that when one door closes, another opens:
http://www.thediabeticscornerbooth.com/2012/04/beat-goes-on.html

 

And if you need more inspiration, check out the Best of the ‘Betes blogs listed at Me and D:
http://www.meanddblog.com/2012/05/best-of-betes-blogs-april-2012.html
Enjoy!

Like these links.

Happy Wednesday! Here are some interesting posts that spoke to me in the past few days:

Kim at Texting my Pancreas celebrated her diaversary this week. And she has her hospital records from back then. More profound today than they were 26 years ago?
http://www.textingmypancreas.com/2012/04/twenty-six.html

Like searching for the happy medium, Karen at Bitter~Sweet is Striving for Level after a lot of upheaval. She reminds us all that “not trying is not an option“:
http://www.bittersweetdiabetes.com/2012/04/striving-for-level.html

Scott Johnson at Scott’s Diabetes has great information that reminds us that the best patients are also their own advocates. Be an empowered patient:
http://scottsdiabetes.com/2012/04/questions-answer/

Enjoy!

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