Tag Archives: diabetes blogs

Don’t miss these events!!!

Just want to ask for a couple of minutes of your time today, so I can remind you about two Must-Dos (if you Can-Do them) next week and the week after.

Monday begins the fourth annual Diabetes Blog Week, hosted by Karen Graffeo at Bitter-Sweet Diabetes. Every day from Monday through Sunday you’ll get a different subject to write about. There are also a couple of wild card subjects just in case a day’s topic leaves you stumped. Each day you’ll publish on that day’s subject, then link your post over at Karen’s.

Perhaps the best part about D-Blog Week is the fact that you’ll get to read and discover others like yourself who are out there telling their stories too. It’s a fun, eye-opening week of discovery and, of course, blogging. Don’t miss it!
http://www.bittersweetdiabetes.com/2013/05/diabetes-blog-week.html
 
 
The following week, on Tuesday, May 21, the first annual all-virtual Diabetes Hope Conference will take place. It all begins at Noon eastern time, 11 a.m. central, 10 a.m. mountain time, and 9 a.m. on the left coast.

They’ll be using Google Hangouts to live stream discussions between panelists. They’ll be taking questions from participants via Twitter… use the hashtag #dHopeConf. If you’re not available then, I’ve found out that it will be recorded and available later via YouTube. Panelists will include (are you ready for this?): Manny Hernandez, Emily Coles, Mike Lawson, Dr. Bruce S. Trippe, Dr. Steven Maynard, George Simmons, Kerri Sparling, and Karen Graffeo (who apparently gets one day of rest after D-Blog Week).

I’m thinking there will be a lot of super discussion involved when that group gets together. You can register for the Diabetes Hope Conference here:
http://www.diabeteshopeconference.com/

That’s it for now. I’ve got to get crackin’ on those D-Blog Week posts…

Have a great weekend!
 
 
 

Like these links.

I know I haven’t had much to say this week. I’ve been sick with that nasty chest cold that’s sweeping the east coast this month, so I’ve been trying to lay low. Just not six feet under low. As such, I thought it would be nice to share some delicacies from other parts of the DOC (Diabetes Online Community).

I’m not linking today to the posts regarding renaming Type 1 and Type 2 diabetes. Although I have to admit to being in the “we’d still have to explain it anyway / let’s support everyone” group, my feeling is: Feel how you want to feel about it. If you want to say you have Pancreatic Distress Syndrome or something else instead of Type 1 or Type 2, then go ahead. And if you don’t like the idea of renaming what we have, I won’t try to convince you otherwise. We’re all entitled to our opinions. Whatever they are. No exceptions.

Now that that’s out of the way, try these on for size.
 
 
Kate’s Sweet Success has a very interesting recipe for… Black Bean Chocolate Cake. It got rave reviews in her household. Are you up for the challenge? Here’s the recipe:
http://kates-sweet-success.blogspot.com/2013/04/cool-beans.html
 
 
Over at Diabetes Mine, Mike Hoskins recently did a thorough review of diabetes social media summits that take place around the country. An interesting look from an insider’s point of view:
http://www.diabetesmine.com/2013/04/whats-next-for-diabetes-social-media-summits.html
 
 
Hallie Addington at The Princess and the Pump has the details of a wonderful interview her little one conducted with Madeline Trumble, who plays Mary Poppins in the Broadway Series touring production of the musical. Madeline is also Type 1. Can’t wait to find out how the meeting turns out:
http://www.theprincessandthepump.com/2013/04/a-spoonful-of-sugar-interview-with-t1.html
 
 
Finally, at ThePerfectD, you’ll find 17 Reasons for four hypoglycemic incidences in less than 18 hours the other day. Read this when you have enough personal space to laugh out loud:
http://theperfectd.com/2013/04/11/seventeen-reasons-for-having-four/
 
 
Hope your weekend is full of wonder and devoid of angst. Enjoy!
 
 
 

And so it begins.

Okay… my clinical trial is underway! This is the trial I wrote about around a month ago.

This past weekend, I received my notice and started wearing the Dexcom™ G4 provided to me for the study. The first week, I’ll be responding to a survey, but other than that, not much to report at this time. Except that insertion of the Dexcom™ was remarkably easy and nice. The receiver is easy to use. I’ll probably do some sort of product review later on. For now, I’m just saying… all CGMs should be like this.

Of course, I have to get used to having one more robot part attached to me around the clock. And I have to actually remember that said robot part is actually attached, so I don’t rip it out putting on my shirt or taking it off. But this is what I signed up for, so if I can just keep my eyes off of the receiver (‘cause I’m obsessive-compulsive like that), I’ll be okay.

More to come as the study continues.
 
 
Speaking of surveys, April over at Nerdy April’s Space Adventures (which is about the coolest blog name ever) is working on her grad school capstone project. The title of her project is… wait for it…

Evaluating the Feasibility and Safety of Type 1 Diabetic Astronauts.

Seriously, it sounds that good. I’ve been thinking about it all weekend. You should go and read about it. Thanks to Scott Johnson for the tweet that turned me on to this post.

Hope your week is blasting off to a high-flying start!
 
 
 

The Patient/Corporate Paradigm.

I read an interesting article in the New York Times on my flight back to Baltimore yesterday:

An MS Drug Takes a Feisty Approach Aimed at Younger Patients

The article talks about the new oral drug to treat Multiple Sclerosis made by Novartis. Or specifically, their advertising for the drug, which features actual patients! Including some who use social media. From the article, quoting Dagmar Rosa-Bjorkeson, head of Novartis’s multiple sclerosis unit.:

The campaign’s upbeat tone comes, Ms. Rosa-Bjorkeson said, from sentiments patients expressed on blogs and other forms of social media where “people were saying that ‘this disease is not going to stop me.’ ”

“Those were spirited words, with an edginess and power to them that wound up giving the campaign a bolder tone,” she said.

Okay, I’m letting that sink in for a minute…

Now, from another part of the article:

Featuring real patients “is a contemporary way to get patients to recognize their symptoms and to be more in control,” said Jeff Rothstein, a partner at Cult Health, a Cult360 ad agency. “But pharma ads have to tread a fine line so they are not seen as promoting the idea that patients should just ask the doctor to write a prescription for the drug.”

These two snippets really have me thinking about something, and I want you to think about it too if you’re out there blogging or tweeting or instagraming (is that a word?) or anything else in social media about your diabetes.

If you were asked to participate in a campaign like this, would you? Don’t forget, this is a drug and not new technology we’re talking about here. What about new technology? Would you say yes to helping to promote technology and no to helping to promote a new drug? Vice versa?

What about this: what if you were asked to participate in corporate advertising and you said no. Would you worry that companies might want to back away from engaging with patients as a result? If you did worry about that, might the idea of that change your mind?

Even though I’ve only been doing this for (almost) a year, I’m increasingly aware that we all walk a fine line when it comes to these kinds of issues (by the way, I’ve never been approached about anything like this). A finer line, perhaps, than I had considered before. And you can bet that the line will get finer and finer as the years go on.

I’m not making a judgment. I have an opinion, but I don’t want to give it here right now because I want you to think about it yourself. Think about what it might be like to participate in advertising like this, or decline to participate. Then think about the implications. Then think about the good, and possibly bad things that can happen as a result of your decision.

What would you do? How would you handle these kinds of questions? However you feel, don’t keep it to yourself. It is important to share your views. If you’re so inclined, please do so below or post something about it on your space in the social media landscape. Then come back and leave a link to it or tell me about it. I’d love to read your opinion.
 
 
 

How busy is YOUR weekend?

I know, I know… Super Bowl. Here are a few additional items to think about this weekend:

– Diabetes Art Day has moved, from the fall to this Monday, February 4. So gather all of your D-Art supplies and create something inspirational. Then post it on the Diabetes Art Day site at
www.diabetesartday.com
Trust me… as long as I’m participating, you will never have to worry about creating the worst submission.

– Have you seen the premiere of the new NBC show Do No Harm? No? Cara over at Every Day, Every Hour, Every Minute did, and she found a host of diabetes-related inaccuracies and inconsistencies. She’s asking you to take a look for yourself, and if you feel the same way, and it bugs you, write about it. Or tweet about it. Or do whatever you can to smash those diabetes myths that seem to be all over this show’s first episode.

– Maureen and I are off to the Children With Diabetes Focus on Technology conference in Washington, D.C. this weekend. If you’re unable to attend, I’ll try to give you some of what I learn at the conference next week. To find out more, check out
http://www.childrenwithdiabetes.com/activities/dc2013/
 
 
Enjoy your weekend… Go #Ravens!