Category Archives: Diabetes

Things to consider this weekend.

Just finished up a great visit with my endocrinologist this morning. More about that next week. In the meantime, in case you didn’t hear about these, here are a few things for you to mull over this weekend:

I’m headed to Bethesda, Maryland (okay, North Bethesda, Maryland) on Saturday for the 2013 JDRF Type 1 Diabetes Summit. Lots of Artificial Pancreas and Islet Cell talk, and a chance to commune with other Type 1ers. I’ll try to write about what I find out next week. If you see me there, I hope you’ll stop me and say hello. It would be my pleasure to meet you. More information about the summit is available at http://www.jdrfsummit.org.
 
 
The Medicine X Conference is scheduled to take place on the campus of Stanford University September 27, 28, and 29. Courtesy of Christopher Snider, notice that MedX is taking submissions for ePatient scholarships to attend the conference. Find out about it at http://medicinex.stanford.edu/medicine-x-alliance-health-epatient-scholarship-program-2013/.

Man, that’s a long web address.
 
 
Finally, I found this little tidbit in my inbox from the U.S. Food and Drug Administration:

FDA wants you to be a part of a new working group “that is geographically diverse and consists of experts and interested persons from all stakeholders in the HIT (Health Information Technology) community to help develop the required strategy and recommendations.”

If you would like to nominate someone or even yourself to serve on this new working group, please visit http://onc-faca.altaruminstitute.net/apply and complete the application by March 8th, 2013.

That’s today, folks. Hurry. And enjoy your weekend!
 
 
 

Can we make it about care again?

I thought about writing about the Diabetes Research Institute’s recent BioHub announcement, but there are already several excellent posts written on the subject. Instead, I’m going to put this piece up for you to consider. Sorry if it seems like I ramble a bit here… this is a multi-faceted subject, and it’s hard to concentrate on one part of it while ignoring everything else. At any rate, I hope this gives you something to think about, and I hope it gives you a little bit of a break from all of the DRI posts this week.

Over the weekend, I heard a rebroadcast of an interesting topic on Diane Rehm’s excellent radio show. It was about healthcare in the USA since the Affordable Care Act has been passed, what we can expect once a large slice of the law takes effect in 2014, and how the law itself doesn’t address the high cost of healthcare in my country, and why. Her guest was Steven Brill, who wrote a cover story for Time magazine on the subject. It’s a really good show and a great story, if you want to check it out:

Show: http://thedianerehmshow.org/shows/2013-03-03/us-health-care-costs-rebroadcast

Story: http://healthland.time.com/2013/02/20/bitter-pill-why-medical-bills-are-killing-us/

One of the points made by Mr. Brill on the show is that he believes that Medicare works pretty good for seniors (compared to the plans most of the rest of us deal with anyway), and most of all, it holds down costs. As a result, he thinks we might be better off if we just allowed everyone the opportunity to enroll in Medicare. I don’t know if this is a great idea or not, but it got me thinking.

Why do I care about this? To begin with, Medicare is where I’m headed in another 15 or 20 years. Also, it’s where you’re headed in the future, if you’re not there already.

So I thought I would look into it. I can’t say much with regard to whether Medicare’s costs are low or astronomical, but there is evidence that the rate of increase in costs for Medicare is nothing compared to the 97 percent increase in insurance premiums Americans have seen since 2002.

When it comes to what Medicare covers, and what it doesn’t cover, there’s a little more documentation. But surprisingly (my skepticism of government-run programs is legendary), there’s a fair amount in there for Seniors With Diabetes (SWD).

For instance… when you’re newly diagnosed, Medicare approves 10 hours of Diabetes self-management training in the first 12 months. Also, you get this training if you’ve already been diagnosed, but you’re going from oral medication to insulin therapy for the first time. I got about an hour’s worth of training back in 1991. What’s covered in the training? The basics about managing your BGs, your diet, and exercise. Also, these interesting bullet points: How to adjust emotionally to having diabetes, and the use of the healthcare system and community resources. By the time I’m eligible for Medicare, I hope this includes finding online support. In addition to the initial training, Medicare recipients are eligible to receive 2 hours of training per year after the initial training. Not sure what’s covered in that.

Now, let’s talk durable medical. On the one hand, Medicare will cover an insulin pump for you and cover 80 percent of the cost if your doctor prescribes it. On the other hand, if you’re on insulin therapy, Medicare will pay for up to 300 test strips every three months. That only allows you to test about 3 times per day. It’s even worse with non-insulin taking SWDs. If you’re like a lot of Type 2s and not on insulin, Medicare will approve up to only 100 test strips every three months. But there is this little caveat, from the online guide Medicare’s Coverage of Diabetes Supplies and Services:

“If your doctor says it’s medically necessary, Medicare will allow you to get additional test strips and lancets. “Medically necessary” means that services or supplies are needed for the diagnosis or treatment of your medical condition and meet accepted standards of medical practice. You may need to keep a record that shows how often you’re actually testing yourself.” So there is that.

On the bright side, your insulin is covered under Medicare part D if you’re on MDI (multiple daily injections). Part D is the prescription drug part of Medicare. If you’re using an insulin pump: Your insulin is still covered, but under the durable medical portion of Medicare part B. In case you’re wondering, they’ve gotten Medicare down to 4 parts:

Part A – Hospital coverage
Part B – Medical coverage, including durable medical supplies
Part D – Prescription drug coverage

Part C – Also known as Medicare Advantage. Offered by Medicare-approved private insurance companies, Medicare Advantage Plans are a way to get the benefits and services covered under Part A and Part B. Most Medicare Advantage Plans cover Medicare prescription drug coverage too. So if you have Part C coverage, you won’t need Part A or B, and you might not need Part D either. Confused yet?

And this is where I have to jump off of the information train for now. The more I read about Medicare, the more I worry about senior citizens in this country (including my parents). Keeping costs down is great, getting coverage for everyone at a time in their lives when they may be the most vulnerable is great, but confusing them with a lot of rules and websites and documents and other things is most definitely not great. Can we make it about caring for our seniors again?

I’m going to be a senior citizen in a couple of decades. I hope by then, coverage will be more universal (there… I said it). I hope we’ll have better access to care and drugs and therapies that will help us live great lives into our golden years. And I hope care for everyone, senior or not, will be determined by need and not by politics or the size of your estate.
 
 
Here are some great resources I found on Medicare and Diabetes…

From Diabetes Monitor:
http://www.diabetesmonitor.com/medicare

From the Centers for Medicare and Medicaid Services, Medicare’s Coverage of Diabetes Supplies and Services:
http://www.medicare.gov/Pubs/pdf/11022.pdf
 
 
 

I really did it.

Okay, lots of views on yesterday’s post. Guess “Let the bloodletting begin” is something that people just can’t roll over without clicking on. So, how did it go yesterday?

For the first time in over 23 years, I gave blood.

DSC00594

This was all done in a meeting room in the building where I work. Let me tell you how things went.

Since my appointment was just before lunch (not a smart idea in retrospect), about 1/2 hour before I went down to do the blood draw, I checked my BG. 81 mg/dL. I didn’t want to be low during the process, so I drank a juice box before I went down.

Once there, I signed in and received an eight-page folder of information to read. It was pretty much what I looked at online… the procedure, who can and can’t donate blood, some information about questions that will be asked during the question and answer session yet to come.

Then I had to go back behind a partition and answer a few more questions. Name, birthdate, etc. They asked me my name a lot during this process. I don’t know if that was because they wanted to make sure I was of sound mind, or if they were trying to catch me giving blood under an assumed name (why anyone would do this, I don’t know).

They also did a temperature check, took my pulse, and did a blood pressure check. Also, they did a finger stick to check the iron level in my blood. There were no tests at all, no questions at all about my diabetes, my blood glucose level, or how I felt.

All the tests they completed were fine, or at least fine enough for me to give blood. Once that was complete, it was time for me to answer a few personal questions in front of a laptop. I won’t go into the detail, but at least a few of them were of a very personal nature. But easy enough to understand, considering how the blood supply needs to be safeguarded.

At this point, I was finally ready to get the needle stuck in my arm and begin the actual blood donation part of the blood donation process. And not only do I bleed into a bag at this point, they also take some samples and set them aside. This is for additional testing, to see if I have hepatitis or HIV, that kind of thing.

In the end, I donated one pint of blood. I actually had the needle in my arm for about 10 minutes, I’m guessing. Start to finish, considering all of the reading, the questions, the screening, and the draining, the process took about 40 minutes. The process was easy, and the Red Cross people they assigned to this effort were well trained and great to talk to. They had Michael Jackson on the Pandora® in the room, and we all had a big laugh when I told them about deejaying back in the 80s, and how I would play some of that stuff both for wild-eyed boys at frat parties and at country club pool parties for the parents of those kids, and how both groups thought that dancing to Michael Jackson was pretty badass at the time. Don’t know why I threw that in there… it just makes me laugh every time I think about it. I was into John Coltrane, John Mellencamp, and George Clinton at the time, so I don’t really have much room to talk.

Anyway, the real thing I was worried about yesterday was the effect that donating blood would have on my BG. Turns out, not that much of an effect at all. After the blood draw, I went back to my desk and got an 84 mg/dL on my meter. I went to lunch and checked about two hours later: 145 mg/dL. When I got home after work, I was down to 79 mg/dL.

I’m not out of the woods yet, of course. The tests run on my blood may come back with something that makes me ineligible to donate again (but I really hope that’s not the case). I was told to expect a letter in the mail in about a week with the results.

The final verdict… donating blood was easy, in this case it was fun, and I will definitely do it again if I’m allowed to do so. Oh, and it was painless. My advice… It’s a personal decision. If you think you’re eligible, consider donating blood. There may be any number of reasons why you can’t or don’t want to do it. But don’t let the diabetes talk you out of it.
 
 
 

Let the bloodletting begin.

No, this isn’t about a bad experience removing an infusion set (fooled you, didn’t I?).

From the I Must Be The Only One Who Didn’t Know This Department comes this news flash:

I have Type 1 Diabetes, and I can give blood.

RedCross

When the word went out recently about a blood drive at my place of employment today, I had the same reaction I usually have. I thought, too bad I can’t donate. Prior to my diagnosis, I used to do that all the time. Like, at least twice per year.

This time though, I wanted to find out exactly why. Admittedly, I thought there might be a blog post in it, so there is some selfishness going on here. Anyway, I went to the American Red Cross blood donation site to see if they had any information on it. Then I was going to try to find another source to see if I could determine whether the information from the American Red Cross was actually true.

There’s not a lot of information on the Red Cross site, but two things jumped out at me. First, the big surprise:

“Diabetics who are well controlled on insulin or oral medications are eligible to donate.”

I was ecstatic to find out that I could actually donate blood. As I stated above, I’m probably the only one who wasn’t aware of it, but I was under the impression all these years that a bad pancreas meant bad blood, and I couldn’t give. My father’s life was saved after an auto accident over forty years ago thanks to some great doctors and blood donations, so I want to pay it forward. Plus, even though it may sound weird to some, I consider it kind of a civic duty to give.

Second, something just a little scary:

”Donors with diabetes who since 1980, ever used bovine (beef) insulin made from cattle from the United Kingdom are not eligible to donate. This requirement is related to concerns about variant CJD, or ‘mad cow’ disease.”

This is not a concern for me, thank goodness. So for now at least, I can still donate.

Don’t be too excited for me yet… I still have to go through the initial in-person screening questions and blood pressure, temperature, etc. tests before they’ll actually put the needle in. But I’m feeling pretty good about my chances right now.

To find out more about giving blood here in the USA, the process, and more, check out the American Red Cross blood donation website at www.redcrossblood.org

What about you? T1D or not, have you given blood? What was it like? Were you ever told you couldn’t give blood? If so, were you told why?

I’ll let you know more about my experience tomorrow…
 
 
 

Almost Bachelorhood

The Great Spousal Unit is staying overnight with a client’s pet this week. And The Live-In Niece has been away for most of this week too. That means almost bachelorhood for me. The good part, where you can eat what you want, watch what you want on the tele… not the bad, lonely part. As long as they don’t stay away too long.

It’s nice generally, because absence sometimes does make the heart grow fonder, and because it’s nice to have a break once in a while, even though we’ve been together for almost 20 years.

But there’s no denying the fact that it means I’m alone all the time. Not a big deal… I was on my own for the first two years or so with this disease. But what does it mean to be on your own when you’re usually not? It means two things.

First, it means the obvious: Getting through the night without my BG going low. I can’t say that I do anything that’s way out of the norm. Except that I try to go to bed with a higher BG than normal. So instead of say, going to bed at 150-160 mg/dL, I’m going to bed at around 170-180 mg/dL. The flip side of that safety measure is that I’m usually higher in the morning than I would like (138 mg/dL this morning). And of course, there’s no guarantee that my body’s metabolism wouldn’t kick in harder during my sleep and cause me to go low anyway. But it’s something I know I can do. I can’t bring myself to set the alarm for the middle of the night so I can check how I’m doing. If you’re doing that, I admire and respect your vigilance.

Second, it means that I have to acknowledge the fact that I sometimes rely on my spouse too much to help me through those hypoglycemic moments. And it’s not even those moments when it happens—What Maureen does really well is making sure that I have everything I need to fight off a low wherever, and whenever, it happens. She lets me know that “Hey, you do ______ when you’re going low. Watch out for that.” It’s the general feeling of “someone’s got your back”. It’s a quality that’s incalculable, and I’m lucky to have it.

So even though I have my dog and my second dog (also known as my cat), I’m reminded this week of what it’s really like to be alone and managing the diabetes. And I’m reminded how lucky I am that it’s not the norm.

How about you? Any strategies for when you’re away from your significant other? How does it make you feel?