#DBlogWeek – Day Three. Thanks for the memories.

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We’re right in the middle of Diabetes Blog Week! Myself and many others are posting for 7 (seven!) straight days. This is day three’s post. Haven’t heard of Diabetes Blog Week? Get the lowdown by clicking on the banner above. Now, on to today’s subject:

Today we’re going to share our most memorable diabetes day. You can take this anywhere…. your or your loved one’s diagnosis, a bad low, a bad high, a big success, any day that you’d like to share. (Thanks to Jasmine of Silver-Lined for this topic suggestion.)

My most memorable diabetes day? I’m not sure if I’m an optimist, really. But I know that I don’t like to dwell on the bad things. So here’s a look at one of my greatest days, with diabetes right in the middle of it. In a good way.

It was just a few months ago. I celebrated my 15 year anniversary at the company where I work. Whenever someone hits a milestone anniversary there, the department gets together and does a thank you, gives a plaque, and then you go back to work.

After more than a few years of ups and downs (mostly downs) between my job and my diabetes, in the last couple years, things had seemed to thaw a bit in the relationship. I’m glad they’ve changed. I’d like to think that I’m a bit less sensitive these days too, and that helps.

Still, I felt a little… nervous about reaching this milestone at work. Kind of like some old demons were left that I couldn’t get rid of. So I was left thinking: how do I take this thing that’s a little uncomfortable, and turn it into something that feels good? I thought about it for some time.

Eventually, I decided on an idea centered around Blue Fridays. Since my anniversary was on a Sunday, I asked everyone to wear blue on the Friday before. I also asked them to make a donation to the Diabetes Community Advocacy Foundation. DCAF is the organization behind the Diabetes Social Media Advocacy website, the DSMA Live and DSMA en Vivo podcasts, and the weekly #DSMA Twitter chat. And Blue Fridays! I talked to my bosses, and they were great about it. I sent an e-mail to my colleagues in Baltimore, New York, and Connecticut, and marked it on my calendar.

And on a cold Friday in February, nearly 20 of my colleagues showed up in three locations wearing blue. They contributed something like 300 dollars to DCAF (sorry, I forgot the final number). I was grateful, I was overwhelmed, and I was thrilled that I was finally able to bring my diabetes to work in a positive way.

How was I able to pull this off? Mostly because of reading others in the Diabetes Online Community and what they were doing. There are so many out there who were, and are, doing such amazing things. Such great things, in fact, that they made me want to do something too.

I know, I’m blowing my own horn here. I’m not really trying to do that. Instead, I’m trying to show that things don’t always have to be uncomfortable and contentious. Sometimes, even if we’re a little afraid to step forward (and I was, at first), when we do despite our fears, good things can happen anyway. It was a feel good day.
 
 
 

#DBlogWeek – Day Two. Let’s write a petition!

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We’re right in the middle of Diabetes Blog Week! Myself and many others are posting for 7 (seven!) straight days. Haven’t heard of Diabetes Blog Week? Get the lowdown by clicking on the banner above. Now, on to today’s subject:

Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) – get creative!! What are you trying to change and what have you experienced that makes you want this change? (Thanks to Briley of inDpendence for this topic suggestion.)

Why yes, I do have an idea for a petition. I would like to see our community as a whole petition the Transportation Security Administration for some changes to their airport screening procedures. Among the changes I would propose:

Providing agents with clear, up-to-date information on insulin pumps, continuous glucose monitors (CGMs), meters, and durable medical supplies. Including pictures.

Finding efficiencies in the pump/CGM screening process. If everything goes well, we have to stand (while our traveling companions wait) as we touch our devices, then get them and the devices swabbed. Then the swabbage gets checked out with a machine that tells us whether there is any explosive residue anywhere. To begin with, this takes too long. It also saps resources that might be better used in another part of the screening process. You don’t have time to check for knives and scissors, but you have time to swab my pump and my hands and question me about something that many travelers wear every day? How is that helping to find potential terrorists?

Providing advocacy for all affected travelers. This is remarkably important. If you’re “randomly selected for additional screening”, once you go beyond the security door, you’re on your own. Why? Is this still America (at least where I live)? Can’t I at least have an advocate in my court who can let my traveling companions know what’s going on? How about an advocate that is well versed in what is appropriate behavior, language, procedures, etc., so I don’t have to be every time I fly? An advocate who, in the event of hypoglycemia during the screening, can advocate on my behalf so I can get access to my juice boxes, Glucolifts, or Honey Stingers?

And while we’re at it, how about requiring a specific level of training for TSA staff? Meaning, all TSA staff? I’m still waiting for the first time that I’m handled the same way in the screening process on both ends of a round trip flight. I shouldn’t be told to go through the metal detector at one airport, then through the full body scanner in another. I shouldn’t be told that I don’t have to remove my medical supplies from my carry on in one airport, then get yelled at for not removing it from my carry on in another airport on my trip home. TSA staff must be more consistent in how they handle everyone, including People With Diabetes.

So that’s it… Clear information. More efficiency when screening our devices. Advocacy for travelers (why does a murderer get an attorney when they need one, but travelers aren’t represented at all in the screening process?). Specific, consistent training for TSA screeners. That’s fair. And it’s not a lot to ask for. It would help us all to feel better while at the same time feeling safer.
 
 
 

#DBlogWeek – Day One. To share or not to share?

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Yay!!! Diabetes Blog Week has officially begun. Myself and many others will be posting for the next 7 (seven!) days. Haven’t heard of Diabetes Blog Week? Get the lowdown by clicking on the banner above. Now, on to the first day’s subject:

Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see?

Well, um… my endocrinologist already reads my blog. Not every day, but enough that if I post something about a terrible low, for instance, I’ll probably get an e-mail within the next week or so.

What do I wish she, and my primary doctor could see about my daily life with diabetes? Probably that my life isn’t perfect, but I’m living. And I’m living a pretty good life. Sure, there are tough days, but I keep on going. It’s not the tough days that define me. It’s getting back up after I’ve been knocked down by this disease that means everything. And if I’m having a hard time getting my BG up into the hundreds or down into the hundreds, it doesn’t always mean I’m screwing up. Sometimes it means I’d be even worse off if I wasn’t trying so hard.

But honestly, when it comes to me and my endo, there’s not much I don’t share. What? What’s that? You’re honest and open with your endo? In what world does this happen?

It happens in a world where your doctor speaks your language. Where your doctor wants to hear what’s going on with you… so if updates are needed in your care, you can discuss them. It happens in an atmosphere where the object of an appointment is both to measure how you’re doing and to discuss what to do in the future to make you better. Such a universe does exist, and I encourage you to find it if you haven’t already.

Now, what do I hope my medical team doesn’t see? I hope my doctors don’t see how concerned I am about my weight. I’m doing what I can to keep from gaining, but my metabolism just isn’t helping me these days. Still, I’m doing what I can. But I could use the help of a dietician. I’m still eating a lot of junk. Anyway, that’s probably the top of the list.

Other than that, my medical team pretty much knows everything. And that’s good. My doctors can help the most when they know the most. It goes without saying (but I’ll say it anyway), two-way discussion without making a patient feel guilty is worth its weight in gold. Hope your medical team is 14 karat spectacular!
 
 
 

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